Okay I was lacking to post my last doctor visit. No news is good news they say!
I had my 2 week follow up with my plastic surgeon on November 19, 2009. She said my nipples are healing well and I just need to put neosporin medicine on at night time. She trimmed some of the stitches that were not dissolved. I was glad because I had a few stitches that would sometimes pock through my shirt and was sharp. There was no pain. The areola is still red and purple but that's the healing process. I will only cover them with gauze only if I am wearing a fancy shirt just in case of some stains otherwise there is no need. She took some pictures to add to my collection. She saw the doctor who I got my third opinion from in NY to determine if I needed radiation and he was asking about me. I was shocked he remembered me and was touched that he asked.
Three days prior to the visit, the bandage came off from my lower stomach area. That was a relief since it was pulling on my skin. She said the area looked well and is healing. She mentioned that I have to wait four weeks for any heavy lifting or to exercise. Its hard because I feel great and look good from the outside by I have to remember I have stitches that need to heal on my breast and my stomach. I am still having pain where the stitches are in my stomach but it seems just on my right side. The pain seems to happen when I lay on my right side in bed but when I lye on my left side I am okay. The doctor said its probably a nerve that is bothering me and the stitches are healing inside. I will go back to my plastic surgeon in two months for a follow up.
On November 24, my husband noticed since I haven't really been examining the nipples that my right nipple was pointing down and seemed it was losing its ability to stay up. I got a little worried and didn't want to wait two months so I wrote via e-mail to my plastic surgeon. She responded right away and said the following: "everything you feel and see is perfectly normal the nipples will change a lot over time pain expected for about four weeks Motrin or Aleve should work".
As of today November 30, 2009 I am feeling much better. My pain in my stomach is at a minimum but I still feel uncomfortable at times. I guess the healing process does take some time. My nipples are healing well. The areola is a light pink color and is even with my breast. Wow you wouldn't know they were out on after wards. The nipple area is getting better for color some brown and purple on the outside but almost healed. It's like when you get a scab and its at the last stage but only in a few spots. The skin is a little dry so I will continue to put neosporin medicine on.
I saw my OBGYN on November 25, 2009 and she said everything at this time looked great. We discussed that I will see her twice a year unless there is a problem. I will see her in May 2010 to have an ultrasound of my ovaries to make sure there is no signs of cancer and then 6 months later for my routine visit.
To all my friends and family, have a wonderful Holiday and make sure you stay happy and healthy!!! I know I have to be thankful for this holiday and many more in the future! Make sure you enjoy each day to the fullest as much as you can. Take Care
Monday, November 30, 2009
Friday, November 13, 2009
Wow the unveiling!!!
This week was much better than last week! Emily returned back to school on Thursday 11/12 since there was no school on Wednesday. She was better on Tuesday with no fever but she had a bad cough so I kept her home one more day. She was upset because she loves school and wanted to go back. Most kids would love to stay home and watch TV all day! I am glad I kept her home an extra day because her teacher wrote me an e-mail and said there was 12 kids out of her class. One of the kids had passed the swine flu around but a course it didn't start with my child!! AJ's asthma is getting better but still has a slight cough. He is still taking the Tamiflu to prevent him from the flu. We are lucky that no other family members got the swine flu from Emily! We were very careful around her, washed and cleaned everything every day.
We are dealing okay with the passing of Brittany. There has been some sad moments for instance when we get home and walk into the house there's no dog running up too you, no nose on the window looking outside when you drive up, no one sitting by us at the kitchen table and a real sad moment when I opened a sympathy card in the mail for Brittany. I thought this was sincere that we received a card from the veterinarian office where we took her since this was not the vet office we used.
Warning........ Warning....I am going to describe my unveiling in detail so if you don't want to know all the details you can stop reading here and wait for my next blog entry.
Yesterday 11/12/09 I saw my plastic surgeon for my first week follow up (8 days). She started to take off the tape and gauze on my right breast first. She wanted to start on this side because this is where the radiation was given. She explained even thou I didn't have any current damage to my implant from the raditaion that there still can be a chance that the right side nipple might seem indented than the other side in the future. This might occur because my skin elasticity isn't as strong on this side from the radiation. Let's pray this doesn't happen! She was impressed how the right side look, yes she's the doctor but she was amazed how well the nipple area already has healed and the final outcome is great! She took the tape and gauze off the left side as well. The tape didn't hurt coming off. She asked me if I would like to look into the mirror to see myself directly not just looking down. Yes, I did! She's amazing, the areola area and the nipples looked real! Both sides were perfect and was amazing. She asked if I felt like a women again? I always felt like a women and was okay looking at my breasts without nipples but now that I have nipples I do have to say I look and feel like a new women. My left side had a small amount of fresh blood when she removed the gauze. She said that was a good sign because that means the blood vessles are getting into the nipple area. She said I can wear a bra again and to cover the nipple area with a gauze just in case it bleeds or rubs. Gene was with me on this appointment and he was amazed as well as we spoke to the doctor about how she performed the surgery. There were plastic cups with the tops cut off around the nipples that helped them stay in place and not to touch the gauze. I only had to be like Madonna for a week, but my cones weren't not near as big as hers! The medical tape was at the top and the bottom of the gauze around my breasts. This tape is so sticky that I had to scrub and use rubbing alcohol to try to remove it all. I have so much that it will take some time to get it all off. It reminds me of cement glue when it dries you can roll up the glue but 10x's as sticky. There were also some pen marks from the doctor to remove as well.
The nipples are real pointy at this time. She said they will start to form their shape and become smaller and wider within the next six weeks. They are red, blue and purple from the surgery. I can see several stitches sticking out as well. The stitches are disposable but she will trim them up or remove any if needed at next weeks appointment. They looked so good that I don't have to use a medicated cream on them. I just have to apply neosporin every day to help the healing.
I am able to take a complete shower now! You don't realize how inconvenient it is when you can't get into the shower and wash your hair and your body without getting certain areas wet until you have to do it.
I just can't let the water hit my chest area directly.
She didn't remove my steri bandages above my c-section line. She wants them to stay there another week. If some of them fall off, its okay. I don't have to cover them in the shower. I asked her why my cut was across my entire c-section line? She explained and drew us a picture. To be able to create the areola into circular round shapes and also have enough skin to form the nipples she cuts the entire length of the stomach area so its even. If she only cut these shapes on one side then she said the skin would be folded and pinched like clothing and wouldn't look correct. After she took off all the skin she needed, she tucked in the remaining skin like a tiny tight tummy tuck. I still have some discomfort in this area and she said there is some bruising and a stitch can be bothering me. I am very open with my doctor especially after all I've been through and she has seen my body. I had a red spot on my pubic area when I came home from the hospital and it has gone away. She explained that during surgery they have to be careful with everything and there was antibacterial soap around that area and I was covered up so perhaps I had a small reaction. I was curious so might as well ask, you don't know otherwise.
I don't have any pain or discomfort in my nipple area. It feels dry, rough and bumpy from the stitches at this time until it heals completely. When you look at my nipple it almost seems like it can fall off but thats not the case. I know they are going to look and turn out perfect. In a few months no one would not know these weren't real nipples! I am glad I did the surgery. Its funny because when I was watching her take off the gauze I was just looking for the nipple and forgot she also had to form the areola section as well.
I will go back to my plastic surgeon next Thursday. Hope it wasn't too graphic but I like to describe what I am going through for those who follow my story, myself (will be hard to remember in the future), and for my children. When they get older I will let them read all the details that I didn't explain to them what I was experiencing or I went through.
We are dealing okay with the passing of Brittany. There has been some sad moments for instance when we get home and walk into the house there's no dog running up too you, no nose on the window looking outside when you drive up, no one sitting by us at the kitchen table and a real sad moment when I opened a sympathy card in the mail for Brittany. I thought this was sincere that we received a card from the veterinarian office where we took her since this was not the vet office we used.
Warning........ Warning....I am going to describe my unveiling in detail so if you don't want to know all the details you can stop reading here and wait for my next blog entry.
Yesterday 11/12/09 I saw my plastic surgeon for my first week follow up (8 days). She started to take off the tape and gauze on my right breast first. She wanted to start on this side because this is where the radiation was given. She explained even thou I didn't have any current damage to my implant from the raditaion that there still can be a chance that the right side nipple might seem indented than the other side in the future. This might occur because my skin elasticity isn't as strong on this side from the radiation. Let's pray this doesn't happen! She was impressed how the right side look, yes she's the doctor but she was amazed how well the nipple area already has healed and the final outcome is great! She took the tape and gauze off the left side as well. The tape didn't hurt coming off. She asked me if I would like to look into the mirror to see myself directly not just looking down. Yes, I did! She's amazing, the areola area and the nipples looked real! Both sides were perfect and was amazing. She asked if I felt like a women again? I always felt like a women and was okay looking at my breasts without nipples but now that I have nipples I do have to say I look and feel like a new women. My left side had a small amount of fresh blood when she removed the gauze. She said that was a good sign because that means the blood vessles are getting into the nipple area. She said I can wear a bra again and to cover the nipple area with a gauze just in case it bleeds or rubs. Gene was with me on this appointment and he was amazed as well as we spoke to the doctor about how she performed the surgery. There were plastic cups with the tops cut off around the nipples that helped them stay in place and not to touch the gauze. I only had to be like Madonna for a week, but my cones weren't not near as big as hers! The medical tape was at the top and the bottom of the gauze around my breasts. This tape is so sticky that I had to scrub and use rubbing alcohol to try to remove it all. I have so much that it will take some time to get it all off. It reminds me of cement glue when it dries you can roll up the glue but 10x's as sticky. There were also some pen marks from the doctor to remove as well.
The nipples are real pointy at this time. She said they will start to form their shape and become smaller and wider within the next six weeks. They are red, blue and purple from the surgery. I can see several stitches sticking out as well. The stitches are disposable but she will trim them up or remove any if needed at next weeks appointment. They looked so good that I don't have to use a medicated cream on them. I just have to apply neosporin every day to help the healing.
I am able to take a complete shower now! You don't realize how inconvenient it is when you can't get into the shower and wash your hair and your body without getting certain areas wet until you have to do it.
I just can't let the water hit my chest area directly.
She didn't remove my steri bandages above my c-section line. She wants them to stay there another week. If some of them fall off, its okay. I don't have to cover them in the shower. I asked her why my cut was across my entire c-section line? She explained and drew us a picture. To be able to create the areola into circular round shapes and also have enough skin to form the nipples she cuts the entire length of the stomach area so its even. If she only cut these shapes on one side then she said the skin would be folded and pinched like clothing and wouldn't look correct. After she took off all the skin she needed, she tucked in the remaining skin like a tiny tight tummy tuck. I still have some discomfort in this area and she said there is some bruising and a stitch can be bothering me. I am very open with my doctor especially after all I've been through and she has seen my body. I had a red spot on my pubic area when I came home from the hospital and it has gone away. She explained that during surgery they have to be careful with everything and there was antibacterial soap around that area and I was covered up so perhaps I had a small reaction. I was curious so might as well ask, you don't know otherwise.
I don't have any pain or discomfort in my nipple area. It feels dry, rough and bumpy from the stitches at this time until it heals completely. When you look at my nipple it almost seems like it can fall off but thats not the case. I know they are going to look and turn out perfect. In a few months no one would not know these weren't real nipples! I am glad I did the surgery. Its funny because when I was watching her take off the gauze I was just looking for the nipple and forgot she also had to form the areola section as well.
I will go back to my plastic surgeon next Thursday. Hope it wasn't too graphic but I like to describe what I am going through for those who follow my story, myself (will be hard to remember in the future), and for my children. When they get older I will let them read all the details that I didn't explain to them what I was experiencing or I went through.
Sunday, November 8, 2009
slow recovery
I am feeling a little better everyday. I am still sore in my stomach area when I get up out of a chair. The burning sensation is gone but when I move wrong , I do get an awful pain in certain areas. Its starting to get itchy which is a good sign of healing. I've been sitting in our glider chair that we used when the kids were babies which allows me to put my feet up on the Ottoman. I had Gene bring it up from the basement, good thing we kept it. The couch is too low. I am looking forward to lay down real soon.
The first four nights of my surgery, I slept in the recliner chair in our bedroom. Two nights ago I woke up with a charlie horse in my right calf and that was painful! I fell back to sleep to wake up again with a charlie horse under my left knee. As of today, I only have pain in my right calf not left but I didn't need this extra discomfort. I think I was so busy with Emily that I didn't drink enough fluids. Now I am drinking alot of fluids that I have to go to the bathroom all the time. I can't win. I am not a back sleeper so its hard to get comfortable. I tried to sleep in our bed last night but had some pain when I move to either side. I just needed a change. I am not taking any pain medication during the day but I do take one before I go to bed to help me sleep. I am also taking an antibiotics to prevent from any infections after the surgery. My scar from my skin graft is bigger then I thought. Its about 10 inches across my lower stomach. I have steri- strips over the incision. I will get all the details on Thursday from the doctor. I was able to take the gauze off that area but I am still covering it with press and seal (works well) when I take a shower. I can't get my chest area wet so I am using the kids shower since their shower has a hand held shower head. I washed my hair in the kitchen sink which is easer to lean over. I am glad this is a temporary situation. I had cancer, I can't believe people go through this pain for bigger boobs! I still have no pain in my chest area.
I am back taking all my medications. My Oncologist texted me (funny but technology now) to stop my Tamoxifen 5 days prior to surgery then to restart when I feel good afterwards. I really don't have any side effects from the Tamoxifen except for two times over the last few months. I woke up in the middle of the night drench in in my sleep. This created me to get tiny bumps on my upper back. They went away after a few weeks after I applied Aquaphor. I guess if this is the only side effect I can deal with it.
Emily has been getting better every day but she still has a low grade fever as of today (11/8/09) so she will not be going to school tomorrow. She still has a cough as well.
Lucky nobody in the family has caught the flu yet, lets keep our fingers cross that we beat it!
AJ is slowly getting better but not a 100%. He missed 3 practices and a game this week. He did play hockey today and seemed okay on the ice and made a goal! (Gene took him)
Some of you know and some of you don't. Brittany our family dog which we bought her before the kids were born hasn't been doing well. Over the last six months her hips have given out on her and she has been limping around. She would drag her feet which would make them bleed. We would have to carry her down the stairs just to go to the bathroom and watch she doesn't fall over while she goes to the bathroom. Unfortunately, Boxers can develop a bad heart or hips that give out later in their life time. There was no guarantee that the surgery would help her and Boxers life span is usually 10-12 years. We decided that it's not fair to see her like this and not knowing if she's in pain. Yesterday Saturday (11/7/09) she was put down. We will miss her and remember all the wonderful times we had with her. We were all upset in the morning but have been doing okay. Emily said she will remember her by a stuff animal that is a Boxer she has. I told her we can print out some photos as well. AJ didn't express much and kept quite. The kids haven't asked about her too much today just made a remark that they miss her. I think in a few days it will be harder when they realize she isn't here in our daily life routine. Brittany was 11 years old, a great dog, companion, and she will always be loved!
This has been a hectic and busy week and look forward to a better next week!
Saturday, November 7, 2009
Final reconstructive surgery
This last week has been busy for our house hold. My son has asthma and I took him to the doctors last Friday (10/30/09) to have his breathing/coughing checked out. The doctor switched his inhaler and had him take it in the morning and night. He also has another inhaler to help control his breathing when needed through-out the day. On Monday, (11/2/09) he came home from school and his eyes were puffy, said he has been sneezing all day and his cough sounded worst. I called and spoke with his doctor and we agreed that the new inhaler wasn’t working and switched him back to his original inhaler. The doctor also prescribed a steroid to help his asthma improve quicker. I was concerned 1. if he catches the swine flu that he is at a higher risk for a chest infection and 2. I was having my surgery on Wednesday and I couldn’t get sick. His doctor knows about my cancer and she has been great when my kids need extra care. She also put him on an antibiotics.
I had my surgery on Wednesday (11/4/09) and it went well for the most part. We arrived at the hospital at 11:00 am and at 11:50 am they called me in, went over the paperwork, and prep me for the pre-op waiting room. I thought wow surgery is on time and ready for 12:30 pm, well surgery ended up being at 1:30 pm. My plastic surgeon was running late with the surgery before mine. I understand because if I was on the operating table, I would want her to take her time but it was long wait for my husband and I. The nurse had a hard time to find a vein large enough on my left hand to insert the IV. She did find one and was able to insert it. The fluid was flowing through the IV but she wanted the anesthesia staff to verify the speed of flow of fluid because it was slow. The anesthesia staff was okay with the insertion. Each nurse and anesthesia staff who were going to be in the operating room, came by to introduce themselves and review my chart. Another nurse also put on the blood pressure legs cuffs for surgery. Each of them made remarks about my plastic surgeon how impressed they were with her work and one nurse said “she told my plastic surgeon, she is an artist and her work was amazing to watch”. My plastic surgeon said she’s not an artist but doing her job but maybe a craftsman if you want to call her that. We did see photos of her work prior and that’s why we selected her for her wonderful work! My plastic surgeon saw me before she started the surgery. She explained that I will be bandage up after the surgery and made a comment that I would look like Madonna. She would put small plastic cups over the nipple area after the surgery so the gauze wouldn’t stick. For those of you wondering you can’t really see them but they are there.
I was given what they call my cocktail into my IV to make me sleepy and wheeled me into the OR room at 1:30 pm. The last thing a remember is the staff strapping both of my arms straight out onto a side table and putting a mask over my nose/mouth to help me go into my deep sleep. I assume they strapped my arms down so I won’t move during the surgery. I woke up in the OR room about 3:35 pm and I was shriving so they had to put several warm blankets on me. I remember this also happened with my mastectomy surgery. I was in the recovery room for a hour to let the anesthesia wear off. They had gave me so much IV fluids that I had to go to the bathroom but they wouldn’t let me get out of bed. I had to use a bed pan and I hated it but when you gotta go you gotta go and I wasn’t going to wet the bed ha ha ha! I was in pain on my lower stomach above my c-section line area where they remove for the skin graft. She gave me some pain medication in my IV. Earlier I mentioned that the nurse was concerned with the IV in my hand for the fluid flow, well during the surgery they had moved it out of my hand and inserted the IV into my inner wrist. That was awkward and in a painful area. I was finally able to get out of bed, sit up in a chair, and get the IV removed a hour later. Gene joined me and I was given some toast (only thing they had to offer) with some ginger ale about 4:50pm. I was hungry since I hadn’t eaten since the night before. I was given a Percocet before we headed home. My mom got the kids off the bus and they were waiting for us at home. We got home just before 6:00pm. We picked up a pizza for dinner and called it an early evening. The kids were happy that I was home and I didn’t have to spend the night at the hospital. I had to sleep on my back so I slept in the reclining chairs in my bedroom. I took a valium to help me relax and go to sleep. My throat and lips were also sore/agitated from the tube being down my throat during surgery. I was also still spelling the anesthesia in my body so I was looking to go to sleep.
That evening my daughter was up three times which she normally doesn’t get up so our sleep was on and off.
The next day Thursday, the kids went to school and I relaxed all day. I am not able to lift any heavy things for concern to pull out my stitches. I still had a lot of pain above my c-section line from the skin graft. When I lean forward it does hurt me and I get a burning sensation. I was told this is a sign of healing but not fun when you have to get out of the chair. I have a gauze over this area and it can be removed in 48 hours. It’s amazing that I have no pain in my chest area. I am covered up with bandages and can’t remove them or get them wet. I will have the unveiling of my new boobs/nipples next Thursday (11/12/09) at the doctor’s office. I was told they looked good but I will have to wait a week to see!
My kids came home from school and my daughter was on fire! She had a temperature of 102 and coughing. I called the doctors and got her appointment for 6:45pm. I had a feeling she might have the flu so I was pro-active and called around to pharmacies to see who has the Tamiflu in stock. It was confirmed at the doctors office that she had the swine flu. We couldn't’t believe it especially this week with everything else going on. I spoke with the doctor and Tamiflu was given for her and my son since his asthma is bad and we are concerned for him as well. It was a long night! We gave both of the kids their first dose of the Tamiflu. AJ was okay but Emily threw it up after a hour. Her temperature was rising again so we had to give her more Motrin. We finally got to bed at 11:45pm. At 1:30am she was up coughing and her temperature was back to 102. By 2:30 am her temperature was 104 so we got her in the bath to cool her down and gave her Tylenol. I called the answering service for the doctors and they said we can alternate Motrin and Tylenol if needed every three hours to control her fever. The nurse said the swine flu can run a temperature as high as 105. If it stays at 105 for a hour and can’t get it down then we need to bring her to the hospital for a possible respiratory bacterial infection or ammonia. We finally went to bed at 3:45am and back up at 6:30am checking on her. She has been much better since that night. Her fever ranges from 100-102. We have been keeping AJ in another room to prevent him from getting the flu. His asthma is about 75% better but hasn't been playing hockey until he is healthy.
I am going to post this and continue the updates on another blog.
I had my surgery on Wednesday (11/4/09) and it went well for the most part. We arrived at the hospital at 11:00 am and at 11:50 am they called me in, went over the paperwork, and prep me for the pre-op waiting room. I thought wow surgery is on time and ready for 12:30 pm, well surgery ended up being at 1:30 pm. My plastic surgeon was running late with the surgery before mine. I understand because if I was on the operating table, I would want her to take her time but it was long wait for my husband and I. The nurse had a hard time to find a vein large enough on my left hand to insert the IV. She did find one and was able to insert it. The fluid was flowing through the IV but she wanted the anesthesia staff to verify the speed of flow of fluid because it was slow. The anesthesia staff was okay with the insertion. Each nurse and anesthesia staff who were going to be in the operating room, came by to introduce themselves and review my chart. Another nurse also put on the blood pressure legs cuffs for surgery. Each of them made remarks about my plastic surgeon how impressed they were with her work and one nurse said “she told my plastic surgeon, she is an artist and her work was amazing to watch”. My plastic surgeon said she’s not an artist but doing her job but maybe a craftsman if you want to call her that. We did see photos of her work prior and that’s why we selected her for her wonderful work! My plastic surgeon saw me before she started the surgery. She explained that I will be bandage up after the surgery and made a comment that I would look like Madonna. She would put small plastic cups over the nipple area after the surgery so the gauze wouldn’t stick. For those of you wondering you can’t really see them but they are there.
I was given what they call my cocktail into my IV to make me sleepy and wheeled me into the OR room at 1:30 pm. The last thing a remember is the staff strapping both of my arms straight out onto a side table and putting a mask over my nose/mouth to help me go into my deep sleep. I assume they strapped my arms down so I won’t move during the surgery. I woke up in the OR room about 3:35 pm and I was shriving so they had to put several warm blankets on me. I remember this also happened with my mastectomy surgery. I was in the recovery room for a hour to let the anesthesia wear off. They had gave me so much IV fluids that I had to go to the bathroom but they wouldn’t let me get out of bed. I had to use a bed pan and I hated it but when you gotta go you gotta go and I wasn’t going to wet the bed ha ha ha! I was in pain on my lower stomach above my c-section line area where they remove for the skin graft. She gave me some pain medication in my IV. Earlier I mentioned that the nurse was concerned with the IV in my hand for the fluid flow, well during the surgery they had moved it out of my hand and inserted the IV into my inner wrist. That was awkward and in a painful area. I was finally able to get out of bed, sit up in a chair, and get the IV removed a hour later. Gene joined me and I was given some toast (only thing they had to offer) with some ginger ale about 4:50pm. I was hungry since I hadn’t eaten since the night before. I was given a Percocet before we headed home. My mom got the kids off the bus and they were waiting for us at home. We got home just before 6:00pm. We picked up a pizza for dinner and called it an early evening. The kids were happy that I was home and I didn’t have to spend the night at the hospital. I had to sleep on my back so I slept in the reclining chairs in my bedroom. I took a valium to help me relax and go to sleep. My throat and lips were also sore/agitated from the tube being down my throat during surgery. I was also still spelling the anesthesia in my body so I was looking to go to sleep.
That evening my daughter was up three times which she normally doesn’t get up so our sleep was on and off.
The next day Thursday, the kids went to school and I relaxed all day. I am not able to lift any heavy things for concern to pull out my stitches. I still had a lot of pain above my c-section line from the skin graft. When I lean forward it does hurt me and I get a burning sensation. I was told this is a sign of healing but not fun when you have to get out of the chair. I have a gauze over this area and it can be removed in 48 hours. It’s amazing that I have no pain in my chest area. I am covered up with bandages and can’t remove them or get them wet. I will have the unveiling of my new boobs/nipples next Thursday (11/12/09) at the doctor’s office. I was told they looked good but I will have to wait a week to see!
My kids came home from school and my daughter was on fire! She had a temperature of 102 and coughing. I called the doctors and got her appointment for 6:45pm. I had a feeling she might have the flu so I was pro-active and called around to pharmacies to see who has the Tamiflu in stock. It was confirmed at the doctors office that she had the swine flu. We couldn't’t believe it especially this week with everything else going on. I spoke with the doctor and Tamiflu was given for her and my son since his asthma is bad and we are concerned for him as well. It was a long night! We gave both of the kids their first dose of the Tamiflu. AJ was okay but Emily threw it up after a hour. Her temperature was rising again so we had to give her more Motrin. We finally got to bed at 11:45pm. At 1:30am she was up coughing and her temperature was back to 102. By 2:30 am her temperature was 104 so we got her in the bath to cool her down and gave her Tylenol. I called the answering service for the doctors and they said we can alternate Motrin and Tylenol if needed every three hours to control her fever. The nurse said the swine flu can run a temperature as high as 105. If it stays at 105 for a hour and can’t get it down then we need to bring her to the hospital for a possible respiratory bacterial infection or ammonia. We finally went to bed at 3:45am and back up at 6:30am checking on her. She has been much better since that night. Her fever ranges from 100-102. We have been keeping AJ in another room to prevent him from getting the flu. His asthma is about 75% better but hasn't been playing hockey until he is healthy.
I am going to post this and continue the updates on another blog.
Friday, November 6, 2009
update
My surgery went well. I am in a little pain above my c-section line from the skin graft.
Sorry for the delay, I know several of you are waiting to read my blog. My household has been busy. My son's asthma last week started up and got bad again on Monday so we been in contact with the doctor alot. I was able to have surgery on Wednesday. I stayed home and relaxed during the day on Thursday until my daughter came home from school not feeling well. We ended up at the doctors office last night to find out she has the swine flu.
We all need to get some sleep. Check back later today or tomorrow for my updates about my surgery and family.
Sorry for the delay, I know several of you are waiting to read my blog. My household has been busy. My son's asthma last week started up and got bad again on Monday so we been in contact with the doctor alot. I was able to have surgery on Wednesday. I stayed home and relaxed during the day on Thursday until my daughter came home from school not feeling well. We ended up at the doctors office last night to find out she has the swine flu.
We all need to get some sleep. Check back later today or tomorrow for my updates about my surgery and family.
Tuesday, November 3, 2009
3rd surgery-finish reconstructive
In three hours, I can’t eat or drink anything after midnight. I am having my 3rd and hopefully final surgery. 11-12-08 1st surgery biopsy , 1-7-09 2nd surgery double mastectomy,
11-4-09 tomorrow finish reconstructive. Wow a lot has happened in the past year!!!
I am looking forward to the surgery tomorrow. I was scared to wake up from my last surgery to hear if my cancer was in my lymph nodes and not knowing what my breast would look like. Tomorrow I am excited to be able to wake up and know that I have finished my reconstructive for both breasts. I will be complete and look like a women again! It will be strange because I am used to what I look like now but their going to be perfect tomorrow afternoon. (or after the healing process has finished)
My surgery is scheduled for 12:30 and it will take around 2 hours. The surgery will be an outpatient operation and I will be home by dinner time. I might have some discomfort so the doctor will give me some pain medication.
I will update my blog to let everybody know how the surgery went and how I am feeling.
I have updated my blog with some pictures from the Breast Cancer Walk which was wonderful! The American Cancer Society raised 375,000 for this one walk.
11-4-09 tomorrow finish reconstructive. Wow a lot has happened in the past year!!!
I am looking forward to the surgery tomorrow. I was scared to wake up from my last surgery to hear if my cancer was in my lymph nodes and not knowing what my breast would look like. Tomorrow I am excited to be able to wake up and know that I have finished my reconstructive for both breasts. I will be complete and look like a women again! It will be strange because I am used to what I look like now but their going to be perfect tomorrow afternoon. (or after the healing process has finished)
My surgery is scheduled for 12:30 and it will take around 2 hours. The surgery will be an outpatient operation and I will be home by dinner time. I might have some discomfort so the doctor will give me some pain medication.
I will update my blog to let everybody know how the surgery went and how I am feeling.
I have updated my blog with some pictures from the Breast Cancer Walk which was wonderful! The American Cancer Society raised 375,000 for this one walk.
Thursday, October 22, 2009
Cancer Surgeon
I had an appointment last week with my cancer surgeon. The visit went well. This was the first time I had an exam since my surgery. There are no concerns at this time. I will continue to see her every six months. I will no longer have mammograms since I have implants. If there is a concern of any kind, then I will need to get an ultra-sound or MRI.
This Sunday October 25, 2009 is my walk with the American Cancer Society Making Strides Against Breast Cancer. Our team name is: Bossom Buddies. I will post some pictures for those of you who couldn't join us. I am still collecting money so I will let everybody know how much we were able to collect. Thanks for all your contributions so far!
November 4, 2009 I will be having surgery to have my nipples put on. This will be an-outpatient surgery. I will continue to update my blog to keep everybody in tune with the latest information.
This Sunday October 25, 2009 is my walk with the American Cancer Society Making Strides Against Breast Cancer. Our team name is: Bossom Buddies. I will post some pictures for those of you who couldn't join us. I am still collecting money so I will let everybody know how much we were able to collect. Thanks for all your contributions so far!
November 4, 2009 I will be having surgery to have my nipples put on. This will be an-outpatient surgery. I will continue to update my blog to keep everybody in tune with the latest information.
Friday, October 9, 2009
Plastic Surgeon visit
I saw my plastic surgeon for my second follow since my radiation has been completed. She said there was no scar tissue build up and the breasts looked good. She took some more pictures to be able to compare the before and after. We spoke about having my next surgery to finish the reconstruction and have the nipples put on. I requested to have this surgery at the beginning of November. The surgery will be an out -patient service and will take around 1- 1 1/2 hours. The skin will be taken above my c-section line to create the nipples. I will have disposable stitches in that area. I have been asked several times how the nipples get a pinkish color so I will let everybody know. Once she forms the nipples, the blood vessels will create the nipples pink. The nipples will take up to six months to complete their shape. I will have disposable stitches around the nipple area. I will be bandage up for a week and then I will have to see my plastic surgeon to follow up.
I will need to get the standard blood work done before the surgery. I will follow the same procedures as far as any other surgeries and stop taken my medications and no Motrin/aspirin a week prior.
My kids are aware of the surgery but I haven't told them actually what is being performed. AJ asked if I still have cancer to remove and I explained that my breast has more reconstruction to be completed. I will sit down with them before the surgery and explain in detail so they aren't afraid and know what is happening. Emily has been aware of the breast cancer symbol when we go out to the stores. Since this month is Breast Cancer Awareness she points out every time she sees the BC sign. She is really involved with my walk and reviews my website with me. Gene and the kids will be joining me at the walk along with family and several friends. The walk is in two weeks and will be a wonderful experience!
I will need to get the standard blood work done before the surgery. I will follow the same procedures as far as any other surgeries and stop taken my medications and no Motrin/aspirin a week prior.
My kids are aware of the surgery but I haven't told them actually what is being performed. AJ asked if I still have cancer to remove and I explained that my breast has more reconstruction to be completed. I will sit down with them before the surgery and explain in detail so they aren't afraid and know what is happening. Emily has been aware of the breast cancer symbol when we go out to the stores. Since this month is Breast Cancer Awareness she points out every time she sees the BC sign. She is really involved with my walk and reviews my website with me. Gene and the kids will be joining me at the walk along with family and several friends. The walk is in two weeks and will be a wonderful experience!
Thursday, September 24, 2009
blood work back
I received my results back from my blood work and everything was good. My vitamin D was at a good level so I will decrease the amount I am taking. I asked some questions that I have been wondering about. He explained why he checks my liver. This test will indicate any abnormalities that something might be wrong. The salt level checks for sodium and potassium. I did get my menstrual cycle and I had some bad cramping/pains which I usually don't get. He said that some women will still get their cycle and will not go into menopause. I can follow up with my OBGYN and she can go over perhaps testing for early menopause. I inquired about a bone density test and he wasn't concern at my stage but said this is something we would be discussing in my next visit in February. He mentioned that Tamoxifen has a small ingredient in it that helps protects my bones. When I need to start this test it will be performed every two years. In October I will be seeing my Cancer surgeon as well as my OBGYN.
Wednesday, September 16, 2009
Oncologist appointment
It has been awhile since I have updated my blog but I didn't need to see my doctors, which is a good thing!
On Monday, I had my first follow up appointment since I have been taking the Tamoxifen. The appointment went well but the wait was horrible (1hr.10min). I was concerned that I haven't been having any side effects since taking the medication. I am not complaining but I want to make sure the medication is working. At night from time to time, I do have night sweats but I am not sure if this reaction is from my medication or because its summer time. He mentioned the blood test is pretty accurate but he will have another blood test performed to verify there wasn't an error.
We also discussed to re-check my blood level for the following: vitamin D, if its back to the correct level I will keep taking it but reduce the milligrams, breast cancer markers to compare from the last blood test, complete blood work analysis, liver salt, and the test to verify the Tamoxifen is able to be absorbed into my blood stream.
He examined my lymph nodes, ears, and throat and everything was good. He mentioned as long as I am feeling good that I don't need to see every doctor each month. As long as I am seeing at least one of my doctor's Oncologist, Cancer Surgeon, or plastic Surgeon every 4 months then I am taken care of my body well.
I knew the Tamoxifen would put my body into a menopause stage but it never occurred to me that I will stop having my menstrual cycle. This hasn't occurred so I will have to wait and see in the next few months. He explained when my cycle does stop and if I start to have a lot of bleeding or spotting then I will need to see my OBGYN. She will perform a transvagial test to verify nothing is wrong. Its hard for women like me who hasn't naturally gone into menopause to tell the difference. At any time I have questions, he asked me to call him.
I will make an appointment to see my Cancer Surgeon to be examined since I haven't seen her in several months. I will also see my Plastic Surgeon in October to be examined for any scar tissue build up due to the radiation or surgery (at this time I don't think I have any, yea!) and hopefully I will be cleared for my final surgery in November.
I will update my blood test results as soon as I get them back.
Please check out my website for the American Cancer Society Breast Walk in October:
http://makingstrides.acsevents.org/site/TR/MakingStridesAgainstBreastCancer/MSABCFY10National?px=11611219&pg=personal&fr_id=19932
On Monday, I had my first follow up appointment since I have been taking the Tamoxifen. The appointment went well but the wait was horrible (1hr.10min). I was concerned that I haven't been having any side effects since taking the medication. I am not complaining but I want to make sure the medication is working. At night from time to time, I do have night sweats but I am not sure if this reaction is from my medication or because its summer time. He mentioned the blood test is pretty accurate but he will have another blood test performed to verify there wasn't an error.
We also discussed to re-check my blood level for the following: vitamin D, if its back to the correct level I will keep taking it but reduce the milligrams, breast cancer markers to compare from the last blood test, complete blood work analysis, liver salt, and the test to verify the Tamoxifen is able to be absorbed into my blood stream.
He examined my lymph nodes, ears, and throat and everything was good. He mentioned as long as I am feeling good that I don't need to see every doctor each month. As long as I am seeing at least one of my doctor's Oncologist, Cancer Surgeon, or plastic Surgeon every 4 months then I am taken care of my body well.
I knew the Tamoxifen would put my body into a menopause stage but it never occurred to me that I will stop having my menstrual cycle. This hasn't occurred so I will have to wait and see in the next few months. He explained when my cycle does stop and if I start to have a lot of bleeding or spotting then I will need to see my OBGYN. She will perform a transvagial test to verify nothing is wrong. Its hard for women like me who hasn't naturally gone into menopause to tell the difference. At any time I have questions, he asked me to call him.
I will make an appointment to see my Cancer Surgeon to be examined since I haven't seen her in several months. I will also see my Plastic Surgeon in October to be examined for any scar tissue build up due to the radiation or surgery (at this time I don't think I have any, yea!) and hopefully I will be cleared for my final surgery in November.
I will update my blood test results as soon as I get them back.
Please check out my website for the American Cancer Society Breast Walk in October:
http://makingstrides.acsevents.org/site/TR/MakingStridesAgainstBreastCancer/MSABCFY10National?px=11611219&pg=personal&fr_id=19932
Friday, August 7, 2009
no news is good news
I have no news so I guess that means everything is going well. I have been feeling pretty good. I had some night sweats but not sure if this is related to the medicine or because its Summer time. I will be following up with my Oncologist, Plastic Surgeon, and Cancer doctor in September and October.
Hope everybody is doing well and enjoying their Summer!
Hope everybody is doing well and enjoying their Summer!
Thursday, July 16, 2009
doctor visits
I had a follow up visit (July 9) with my plastic surgeon since I finished my radiation. She said my breasts looked well and there is no scar tissue build up. Yea, that was great news to hear! I will have another visit with her in October. If everything looks well at that time then I will have surgery in November to put on my nipples. It will be an out patient surgery. We reviewed where the skin will be removed from (I have a few options) and the healing process for the surgery. She took more photos to add to my medical folder. Hopefully we will never have to compare the photos and no major changes occur.
I saw my dermatologist (July14) for a full body scan. This is the first one I ever had this done. I had moles removed in the past but now I have have a 5% higher chance for melanoma so a mole check was recommended. The doctor checks every part of your body. My check-up went well and I didn't have any moles that looked abnormal. I will have this procedure done once a year.
I am feeling great and not having any side effects.
I saw my dermatologist (July14) for a full body scan. This is the first one I ever had this done. I had moles removed in the past but now I have have a 5% higher chance for melanoma so a mole check was recommended. The doctor checks every part of your body. My check-up went well and I didn't have any moles that looked abnormal. I will have this procedure done once a year.
I am feeling great and not having any side effects.
Tuesday, June 30, 2009
Making Strides Against Breast Cancer
I haven't posted lately because I don't have any new updates. I am feeling good. I am lucky that I have no side effects at this time from the taking the Tamoxifen.
I have formed a team called the Bossom Buddies and we will be walking for an organization called "Making Strides Against Breast Cancer". If you can join our walk or would like to donate for this event please visit my site at:
http://makingstrides.acsevents.org/site/TR/MakingStridesAgainstBreastCancer/MSABCFY10National?px=11611219&pg=personal&fr_id=19932
Thank you for all your concerns about my medical condition. I am a survivor and will continue to be monitored my entire life by my doctors. I am a fighter and will continue to fight this awful disease. I am walking because we need to help find a cure for now and for the future! This walk is special to me. I have experience the ups and downs and don't want any more individuals to have to go through all the pain, surgeries, and treatments of this awful cancer that I have experienced. Lets help raise money to educate, help, and find a cure!
I have formed a team called the Bossom Buddies and we will be walking for an organization called "Making Strides Against Breast Cancer". If you can join our walk or would like to donate for this event please visit my site at:
http://makingstrides.acsevents.org/site/TR/MakingStridesAgainstBreastCancer/MSABCFY10National?px=11611219&pg=personal&fr_id=19932
Thank you for all your concerns about my medical condition. I am a survivor and will continue to be monitored my entire life by my doctors. I am a fighter and will continue to fight this awful disease. I am walking because we need to help find a cure for now and for the future! This walk is special to me. I have experience the ups and downs and don't want any more individuals to have to go through all the pain, surgeries, and treatments of this awful cancer that I have experienced. Lets help raise money to educate, help, and find a cure!
Monday, June 8, 2009
started Tamoxifen
I started the Tamoxifen last week. I didn't experience any of the major side effects. YEA!!! The only thing I noticed was a little constipation but I was okay by the end of the week. I am also on several vitamins so its hard to know where these reactions are from. I hope this path continues for the remaining five years minus a week.
I had my one month follow up visit with my Radiation Oncologist last Thursday. The visit went well. She said my skin looked good and at this time I don't have any scar tissue which was a concern after radiation. She suggested to massage the area and this can help any scar tissue that can still build up. The only thing she noticed was my skin was drier on the side I had radiation and to make sure I put some cream on it each day. I have to follow up with her next April 2010. I didn't realize that these visits will remain for awhile.
I am feeling great. I will continue to have follow up appointments through out the summer. My next appointment is in July with my plastic surgeon and my cancer surgeon.
I had my one month follow up visit with my Radiation Oncologist last Thursday. The visit went well. She said my skin looked good and at this time I don't have any scar tissue which was a concern after radiation. She suggested to massage the area and this can help any scar tissue that can still build up. The only thing she noticed was my skin was drier on the side I had radiation and to make sure I put some cream on it each day. I have to follow up with her next April 2010. I didn't realize that these visits will remain for awhile.
I am feeling great. I will continue to have follow up appointments through out the summer. My next appointment is in July with my plastic surgeon and my cancer surgeon.
Tuesday, May 26, 2009
I met with my Oncologist
I met with my Oncologist last week. Just like my other doctors my appointment was running late and we were seen 45 minutes later. I guess thats how it is when I see the best doctors!
We reviewed all my medical history and what treatment would be best for me at this time. The explanation about my cancer tests was referred as molecules/atoms related back to a science class. It was a lot of information but was also confusing.
He explained to my husband and I there will always be a concern for cancer in my body. We will pray and hope there is no recurrence but there is no guarantee for the cancer. My lymph nodes were negative but we don't know if any cells traveled outside my lymph nodes before I was tested. He believes a pet-scan will not benefit me at this time. There is a lot of false positive results which will lead me into a panic mode. If the test was positive then they would test the area which is performed by surgery and 98% of the cases are okay. The MRI did not detect the cancer in my margins before the radiation so performing another MRI would not be wise. He doesn't want to expose me to any extra radiation then I need to have. I will have several tests perform in the future and have many years ahead of me so less radiation at this time is good. He informed me if I have any part of my body that aches or feels abnormal that I need to contact him. He gave an example: if a person who doesn't have cancer might have a back ache and the doctor might advise them to perform some exercise and to check back in 6 weeks. If I have an ache and it doesn't go away in 6 days, he will request a test to verify nothing is wrong.
He asked if I would like to know the prediction about my cancer in the next ten years via a software program he uses. He had to ask because some people don't like to know the future. I would like to be prepared as much as possible so I wanted the results. This graph will be able to pre-dict in 10 years if my cancer would come back with or without using different hormone therapies. The software wasn't working while we were at the office so I received the results in the mail a few days later. The results were the following: if I did not take any medications my risk for relapse will be 13%. If I take Tamoxifen, then my risk would be 7%. This graph is based on my cancer findings which are inputted into this program for example my tumor grade, tumor size, my age and some other factors.
I had to get some blood work so he compare the levels within my body to the near future. I had the blood drawn a few days ago but I don't know the results.
I did received the results back (since I haven't post this blog). My blood count was good, test markers for breast cancer C27 & C29 both were good (nothing showed up at this time but doesn't mean it can't in the future), blood and liver salt good ( I am not sure what this test was, I will have to ask him the next time we speak), my metabolism was verified in an active form which was good (this will allow my blood to absorb the medication well), my vitamin D was low. It was 25 insufficient, 30 is normal so I will be taking a prescription for 6 months and then will be re-tested. Vitamin D has been recently found to help several functions of the body. I will be taking 2,000 mg a day, I believe an individual should have 1,000 a day. (check with your doctor male or female)
We discussed at this time I will take Tamoxifen for five years (will start next week,) and see how I feel. The side effects for the Tamoxifen will start right away. I hope I don't have to many of them! If I am have some side effects like hot flashes that I need to try to cope with them instead of opting out to take the medication. He gave me his cell phone and to call him when I have any questions.
He left it up to me if I would like to remove my ovaries and said that isn't urgent and I can decide with in 3-6 months. He feels that it is good to have a transvagial ultrasound but having this test twice a year may not be enough. Since breast cancer is strongly connected with the ovaries that I might want to consider to have them removed. Estrogen feeds the cancer so if I remove them there is a less of a chance for the cancer to return. When I decide to remove them, I will explain the change in medication at that time.
I have an appointment to see him again in September unless something changes.
Sorry so late for the updates, take care :>
We reviewed all my medical history and what treatment would be best for me at this time. The explanation about my cancer tests was referred as molecules/atoms related back to a science class. It was a lot of information but was also confusing.
He explained to my husband and I there will always be a concern for cancer in my body. We will pray and hope there is no recurrence but there is no guarantee for the cancer. My lymph nodes were negative but we don't know if any cells traveled outside my lymph nodes before I was tested. He believes a pet-scan will not benefit me at this time. There is a lot of false positive results which will lead me into a panic mode. If the test was positive then they would test the area which is performed by surgery and 98% of the cases are okay. The MRI did not detect the cancer in my margins before the radiation so performing another MRI would not be wise. He doesn't want to expose me to any extra radiation then I need to have. I will have several tests perform in the future and have many years ahead of me so less radiation at this time is good. He informed me if I have any part of my body that aches or feels abnormal that I need to contact him. He gave an example: if a person who doesn't have cancer might have a back ache and the doctor might advise them to perform some exercise and to check back in 6 weeks. If I have an ache and it doesn't go away in 6 days, he will request a test to verify nothing is wrong.
He asked if I would like to know the prediction about my cancer in the next ten years via a software program he uses. He had to ask because some people don't like to know the future. I would like to be prepared as much as possible so I wanted the results. This graph will be able to pre-dict in 10 years if my cancer would come back with or without using different hormone therapies. The software wasn't working while we were at the office so I received the results in the mail a few days later. The results were the following: if I did not take any medications my risk for relapse will be 13%. If I take Tamoxifen, then my risk would be 7%. This graph is based on my cancer findings which are inputted into this program for example my tumor grade, tumor size, my age and some other factors.
I had to get some blood work so he compare the levels within my body to the near future. I had the blood drawn a few days ago but I don't know the results.
I did received the results back (since I haven't post this blog). My blood count was good, test markers for breast cancer C27 & C29 both were good (nothing showed up at this time but doesn't mean it can't in the future), blood and liver salt good ( I am not sure what this test was, I will have to ask him the next time we speak), my metabolism was verified in an active form which was good (this will allow my blood to absorb the medication well), my vitamin D was low. It was 25 insufficient, 30 is normal so I will be taking a prescription for 6 months and then will be re-tested. Vitamin D has been recently found to help several functions of the body. I will be taking 2,000 mg a day, I believe an individual should have 1,000 a day. (check with your doctor male or female)
We discussed at this time I will take Tamoxifen for five years (will start next week,) and see how I feel. The side effects for the Tamoxifen will start right away. I hope I don't have to many of them! If I am have some side effects like hot flashes that I need to try to cope with them instead of opting out to take the medication. He gave me his cell phone and to call him when I have any questions.
He left it up to me if I would like to remove my ovaries and said that isn't urgent and I can decide with in 3-6 months. He feels that it is good to have a transvagial ultrasound but having this test twice a year may not be enough. Since breast cancer is strongly connected with the ovaries that I might want to consider to have them removed. Estrogen feeds the cancer so if I remove them there is a less of a chance for the cancer to return. When I decide to remove them, I will explain the change in medication at that time.
I have an appointment to see him again in September unless something changes.
Sorry so late for the updates, take care :>
Saturday, May 16, 2009
misc info
I want to thank everybody for your continued support. I am grateful to have so many of you concerned about my health. The major surgery and radiation is behind me now. I will continue to see my cancer doctor and my plastic surgeon over the next few months before my next surgery. (which probably won't be until November) I am seeing my Oncologist on Monday May 16. I am feeling good. My rash is slowly diminishing and I am not peeling anymore. I will continue to apply the lotions to my skin to help the healing.
I have been so busy with updating about my medical condition that I forget to mention in my blog that I have been attending a support group twice a month since February. My emotions always felt good and strong and I was comfortable talking about my cancer but I enjoyed going to the meetings. I met several nice women who all had a different stories why they were there. It was helpful to attend these classes because the women shared their cancer stories on how they are feeling at their point of their treatment. It was nice to hear from someone else who has been through the situation that you might be coming up too. The best thing I would get from these individuals were suggestions who been through the same situation that I am about to experience.
The support group is on Monday evening every two weeks except for last month it was a 3 week span. I had missed the last two sessions about six weeks and when I went back last week everybody was surprised that I finished my radiation. It didn't seem fast for me but when I haven't seen these individuals they didn't get the latest updates.
The group has one more class left and then will only meet twice this summer. If the same women continue to go, I will continue because you feel a connection to them and want to make sure everybody is healing in a positive direction.
I am going to participate in a Breast Cancer walk in October and will give everybody the information as it gets sooner.
Hope everybody is doing well and feeling great!
I have been so busy with updating about my medical condition that I forget to mention in my blog that I have been attending a support group twice a month since February. My emotions always felt good and strong and I was comfortable talking about my cancer but I enjoyed going to the meetings. I met several nice women who all had a different stories why they were there. It was helpful to attend these classes because the women shared their cancer stories on how they are feeling at their point of their treatment. It was nice to hear from someone else who has been through the situation that you might be coming up too. The best thing I would get from these individuals were suggestions who been through the same situation that I am about to experience.
The support group is on Monday evening every two weeks except for last month it was a 3 week span. I had missed the last two sessions about six weeks and when I went back last week everybody was surprised that I finished my radiation. It didn't seem fast for me but when I haven't seen these individuals they didn't get the latest updates.
The group has one more class left and then will only meet twice this summer. If the same women continue to go, I will continue because you feel a connection to them and want to make sure everybody is healing in a positive direction.
I am going to participate in a Breast Cancer walk in October and will give everybody the information as it gets sooner.
Hope everybody is doing well and feeling great!
Saturday, May 9, 2009
Updates
I had my ovaries checked and everything was good. I still need to speak with my OBGYN to verify how often I will be getting them checked.
My skin is a little better, the redness went away. I still have my rash but its slowly going away. I did get a lot of peeling in two areas (top of the breast into my arm pit area and under my breast)that has become sensitive. I continue to apply the creams and hope it gets better soon!
I have an appointment with my Oncologist on May 18. At this time we will have a consultation and I will get my prescription for Tamoxifen.
Thank you for all your support!!!
My skin is a little better, the redness went away. I still have my rash but its slowly going away. I did get a lot of peeling in two areas (top of the breast into my arm pit area and under my breast)that has become sensitive. I continue to apply the creams and hope it gets better soon!
I have an appointment with my Oncologist on May 18. At this time we will have a consultation and I will get my prescription for Tamoxifen.
Thank you for all your support!!!
Saturday, May 2, 2009
Radiation week six
My last week for radiation has been completed, 28 treatments done. YEA!!! Monday and Tuesday went as usual but as Wednesday came I started not sleeping well at night because of my skin. Its red all over and the skin was getting more sensitive especially under my armpit and on my side. I still have the rash which is a red color with several dots within the rash. The doctor said the rash will take a few weeks to go away. By Friday, the skin on my side and under my arm had turned a brown color. It feels like a real bad sunburn. When I stretch my arm especially when I sleep it hurts because it stretches the skin and is real sensitive. I will continue to apply both creams onto the entire area for the next few weeks. This will help keep the area moist. I have a little peeling under the breast and on my side. It has been uncomfortable all weekend. I hope each day it gets little better. I am so happy that my treatment is over! I can't imagine if I had to continue. The doctor mentioned if my bra rubs on the area to not wear it and let the area heal.
I spoke with my Oncologist and he said I can make an appointment with in the next few weeks. It wasn't urgent to go on the Tamoxifen right away. He will review what I need to be concerned about going into the future. I will also have some blood work done.
On Monday May 4, I am going to my OBGYN office to make sure my ovaries are okay. I am seeing the doctor who performs the ultrasounds. I will be having a procedure called trans vaginal ultrasound. I will also inquire about getting blood work done to check the level for ovarian cancer within the blood. I will have both procedures done to help rule out ovarian cancer.
I spoke with my Oncologist and he said I can make an appointment with in the next few weeks. It wasn't urgent to go on the Tamoxifen right away. He will review what I need to be concerned about going into the future. I will also have some blood work done.
On Monday May 4, I am going to my OBGYN office to make sure my ovaries are okay. I am seeing the doctor who performs the ultrasounds. I will be having a procedure called trans vaginal ultrasound. I will also inquire about getting blood work done to check the level for ovarian cancer within the blood. I will have both procedures done to help rule out ovarian cancer.
Monday, April 27, 2009
Radiation week five
This week was better than last week. The usual treatments occurred. I was a little tired but nothing like the previous week. I did take a short nap twice this week to make sure my body didn't get run down.
On Friday evening, I started to get a rash. The rash isn't too bad, looks like a bunch of red marks. It doesn't itch or bother me. The rash didn't go away through-out the weekend.
I have one more week left and I will be done with radiation on May 1 Yea!!!
I saw my plastic surgeon for a follow up check up. She said my skin looked good and to see her in two months. She mentioned that I need to wait 6 months before I do any more surgery. The side effects happened after the treatment for example rash, hardness or tightness of the implant. This happens to only 40%. I am going to be positive and hope I am under the 60% category.
On Friday evening, I started to get a rash. The rash isn't too bad, looks like a bunch of red marks. It doesn't itch or bother me. The rash didn't go away through-out the weekend.
I have one more week left and I will be done with radiation on May 1 Yea!!!
I saw my plastic surgeon for a follow up check up. She said my skin looked good and to see her in two months. She mentioned that I need to wait 6 months before I do any more surgery. The side effects happened after the treatment for example rash, hardness or tightness of the implant. This happens to only 40%. I am going to be positive and hope I am under the 60% category.
Monday, April 20, 2009
A surprise
I had a great surprise in the middle of last week. Some of the guys from the hockey team at Quinnipiac University (a private, coeducational university is about 25 minutes from our house) would come out and help at some of my son's hockey practices as well as other ages/levels in our hockey league. It was special for these kids to learn and share the ice with them. This lasted for a few months and was a great experience. My husband was friendly with one of the players from the Quinnipiac team and kept in contact with him. We would go to the University and watch their hockey games during the winter.
This gentleman had called my husband and asked if they can come by the house because his classmate and him had something for me. I was shocked because I knew him but not that well. They had a college class until 7:45 pm and my kids were thrilled to have him at our house so I let the kids stay up that night past their bed time.
When they arrived at my house they greeted me with two giant bouquet of mixed flowers. They informed me that they have chosen me as a part of their class project. The course they were taking was an Entrenepeur class and their assignment was to raise money and donate to an organization/ individual and their family which has an illness/disease. They picked me since I am going through breast cancer. This was extra special to me because the other guy never met me and went along with his friend's decision to select me. He wasn't on the hockey team, he is on the golf team. They did such a terrific job surprising me and coming up with the gifts.
As my daughter and I went into the kitchen to get vases for the flowers, they said they had to go out to the car to get some additional stuff. The flowers filled three big vases and we spread them around the house. The faces on both of my kids when they came back in was great! They bought my son a plush baseball Easter basket and my daughter a plush bunny Easter basket. Inside each basket was amazing amount of candy! They put 3-4 full bags of candy inside each basket of different chocolates, 2 packages of peeps, 2 boxes of Cadbury creme eggs, and a 2 foot chocolate bunny. They also gave Gene and I a basket full of candy. They presented us with a tray of cookies they bought as well. I told my kids that the Easter bunny didn't have to come to our house, but they didn't agree! They also gave me a lovely card and inside the card was four $100 gift cards to Stop and Shop (grocery store). That was a great idea since we do shop there and the gift cards will be used for our grocery shopping.
They had a poker night with all their friends to help raise the money. They had my website on their computer to show everybody about the fund they would be contributing too. We took a few photos so they could take them back to their teacher.
This was thoughtful gift and I was touched that I was chosen by them.
This gentleman had called my husband and asked if they can come by the house because his classmate and him had something for me. I was shocked because I knew him but not that well. They had a college class until 7:45 pm and my kids were thrilled to have him at our house so I let the kids stay up that night past their bed time.
When they arrived at my house they greeted me with two giant bouquet of mixed flowers. They informed me that they have chosen me as a part of their class project. The course they were taking was an Entrenepeur class and their assignment was to raise money and donate to an organization/ individual and their family which has an illness/disease. They picked me since I am going through breast cancer. This was extra special to me because the other guy never met me and went along with his friend's decision to select me. He wasn't on the hockey team, he is on the golf team. They did such a terrific job surprising me and coming up with the gifts.
As my daughter and I went into the kitchen to get vases for the flowers, they said they had to go out to the car to get some additional stuff. The flowers filled three big vases and we spread them around the house. The faces on both of my kids when they came back in was great! They bought my son a plush baseball Easter basket and my daughter a plush bunny Easter basket. Inside each basket was amazing amount of candy! They put 3-4 full bags of candy inside each basket of different chocolates, 2 packages of peeps, 2 boxes of Cadbury creme eggs, and a 2 foot chocolate bunny. They also gave Gene and I a basket full of candy. They presented us with a tray of cookies they bought as well. I told my kids that the Easter bunny didn't have to come to our house, but they didn't agree! They also gave me a lovely card and inside the card was four $100 gift cards to Stop and Shop (grocery store). That was a great idea since we do shop there and the gift cards will be used for our grocery shopping.
They had a poker night with all their friends to help raise the money. They had my website on their computer to show everybody about the fund they would be contributing too. We took a few photos so they could take them back to their teacher.
This was thoughtful gift and I was touched that I was chosen by them.
Radiation week four
More than half way done, 18 days down and ten more to go! The beginning of the week went well. I had the usual routine on M,T,W. On these days, I will have one/two of the following done during my treatment time: weight checked, blood pressure checked, temperature checked, pulse checked, x-ray taken every five days, and a visit with my radiation doctor.
On Wednesday in the early evening I was extremely tired. I wanted to go to bed real early. I had no energy to do anything. I also had a bad headache. I am not sure if this is part of the radiation or my busy schedule. On Thursday evening, I felt the same way. This was very frustrating to get my energy taken away from me.
On Friday, I was leaving with my family to Massachusetts for a hockey tournament weekend. I went for my treatment at 6:30 am. My energy was better this day but I took a nap in the afternoon to be safe. I still had the bad headaches. I will check with my doctor to see if this is a side effect. I will go next week M-F
Since I am writing this blog after the weekend, I will inform everybody my energy was back to normal Saturday and Sunday. I am still having a little headache some times and will be asking the doctor about them. Lets say a pray that my energy is not going to drain me again, that was painful not to do anything!
On Wednesday in the early evening I was extremely tired. I wanted to go to bed real early. I had no energy to do anything. I also had a bad headache. I am not sure if this is part of the radiation or my busy schedule. On Thursday evening, I felt the same way. This was very frustrating to get my energy taken away from me.
On Friday, I was leaving with my family to Massachusetts for a hockey tournament weekend. I went for my treatment at 6:30 am. My energy was better this day but I took a nap in the afternoon to be safe. I still had the bad headaches. I will check with my doctor to see if this is a side effect. I will go next week M-F
Since I am writing this blog after the weekend, I will inform everybody my energy was back to normal Saturday and Sunday. I am still having a little headache some times and will be asking the doctor about them. Lets say a pray that my energy is not going to drain me again, that was painful not to do anything!
Friday, April 10, 2009
Radiation week three
Radiation was okay this week, no problems. There is a slight color change in my skin appearance almost like a slight tan.
I wasn't aware that the department was closed for Good Friday so I only went four days this week. I've had 13 treatments, 15 more to go!
My kids are off from school next week so the radiation technician is working with me and letting me change my schedule on several of the days so I don't have to get the kids up to early. Next week I will be going M-F.
I spoke with the genetic counselor from New York and she was able to get additional information about my genetic findings. Through a scientific program which they can't guarantee the accuracy of the findings shows that my BRAC2 is in a category that is harmful. It is difficult to explain the situation but this is what I understand. The gene can be harmless or harmful. When it is harmful like mine is, there is a higher chance that the breast cancer gene can travel to the other breast. In my case, I decided to remove both of the breast so this confirms I made one of the best decisions in my life. As far as other risk that I have to be aware of are the following: chance for ovarian cancer which the gene is linked to breast/ovarian so I will be following up with my OBGYN after radiation is completed, 5% chance for melanoma so I need to be extra caution in the sun, wear sunscreen/ hats and see a Dermatologist once a year for a body scan for unusual moles, and I have a 5% chance for pancreas cancer, which I will speak with my Oncologist about for a possible blood test since there is no pre-caution screening for this one.
She also mentioned to me that the doctor I saw in NY helped discovered the BRAC2 and is involved with all kinds of research. Myriad Genetic Laboratories in Utah where the the testing is patent will continue to compare my gene pattern, history, and age to other families and will inform me of any findings that they may discover in the future. The company compares all of the criteria and reviews other families that may have the same situation that is happening in their DNA. At this time, there are no other families like mine, they don't count my mom since she is art of my direct family. Let's pray in the future that they can help cure or minimize cancer!
I wasn't aware that the department was closed for Good Friday so I only went four days this week. I've had 13 treatments, 15 more to go!
My kids are off from school next week so the radiation technician is working with me and letting me change my schedule on several of the days so I don't have to get the kids up to early. Next week I will be going M-F.
I spoke with the genetic counselor from New York and she was able to get additional information about my genetic findings. Through a scientific program which they can't guarantee the accuracy of the findings shows that my BRAC2 is in a category that is harmful. It is difficult to explain the situation but this is what I understand. The gene can be harmless or harmful. When it is harmful like mine is, there is a higher chance that the breast cancer gene can travel to the other breast. In my case, I decided to remove both of the breast so this confirms I made one of the best decisions in my life. As far as other risk that I have to be aware of are the following: chance for ovarian cancer which the gene is linked to breast/ovarian so I will be following up with my OBGYN after radiation is completed, 5% chance for melanoma so I need to be extra caution in the sun, wear sunscreen/ hats and see a Dermatologist once a year for a body scan for unusual moles, and I have a 5% chance for pancreas cancer, which I will speak with my Oncologist about for a possible blood test since there is no pre-caution screening for this one.
She also mentioned to me that the doctor I saw in NY helped discovered the BRAC2 and is involved with all kinds of research. Myriad Genetic Laboratories in Utah where the the testing is patent will continue to compare my gene pattern, history, and age to other families and will inform me of any findings that they may discover in the future. The company compares all of the criteria and reviews other families that may have the same situation that is happening in their DNA. At this time, there are no other families like mine, they don't count my mom since she is art of my direct family. Let's pray in the future that they can help cure or minimize cancer!
Sunday, April 5, 2009
Radiation-week two
The second week of the radiation went pretty good. ( 9 days down, 19 to go) The mornings have been going quicker then the following week. The time slot has not be late and a few days I didn't even have to go into the waiting room. My procedure is not determined by the time I get radiation but is measured by the dosage. On Monday, they took some x-rays to verify that I am in the mold correctly and that the radiation is targeting the correct area. On Tuesday, I saw my radiation doctor and nothing has changed since I just started. She mentioned that late in the week or next week I might see a change in my skin color or feel fatigue The rest of the week went well. I didn't get tired this week. I did have some sharp burning pains on Friday late day. I did get a slight pink/red color today on my breast into my arm pit area. I made sure I applied the cream three times a day. The redness was diminished by Sunday. We will see how next week will look like.
I asked the radiation technician to explain the reason why I can't shave under the right underarm and she mentioned its for irritation especially when the skin is red. The good news is that she mentioned that I can use an electric shaver, so I did!
This week will be a normal schedule Monday - Friday.
I asked the radiation technician to explain the reason why I can't shave under the right underarm and she mentioned its for irritation especially when the skin is red. The good news is that she mentioned that I can use an electric shaver, so I did!
This week will be a normal schedule Monday - Friday.
Sunday, March 29, 2009
1st week: Radiation
The first week for my radiation went well. I didn't have any side effects at this time. I am going each morning at 8:30 AM for my appointments. My radiation doctor is on vacation but I saw the covering doctor this week. Once a week the doctor examines you and ask if you have any questions. The nurse also takes your blood pressure and pulse once a week. The doctor gave me a prescription for a cream that I have to mix with another over the counter cream to apply three times a day to help my skin stay moist. I don't feel the radiation, I just hear the noises from the machine. The procedure takes about 8 minutes. It takes me longer to drive there, park, and wait in the waiting room then the actual procedure. Its about 20 miles round trip from my house and back. The hospital where I go is different then where I had my surgery performed.
I will go this week Tuesday - Friday.
I will go this week Tuesday - Friday.
Friday, March 20, 2009
Starting Radiation
The doctor from NY and my Radiation Oncologist reviewed my medical plan together. I will be going to the place where I was originally going to have my radiation but I will not be using the machine he thought I should use. The hospital were I am going has the machine but doesn't use it for the breast. The two doctors agreed on the frequency, dose, fractions and overall treatment plan and they were on the same page.
I will going 5 days a week in the early morning for 28 treatments (5 1/2 week) I will be going Monday - Friday except for my first two weeks. The hospital where I am going has to install new software into their computer so I will start my first treatment on Sunday March 22 - Thursday. The following week I will go Tuesday - Friday and then start a normal schedule Monday - Friday.
I will let inform everybody how I am feeling during my treatment.
I will going 5 days a week in the early morning for 28 treatments (5 1/2 week) I will be going Monday - Friday except for my first two weeks. The hospital where I am going has to install new software into their computer so I will start my first treatment on Sunday March 22 - Thursday. The following week I will go Tuesday - Friday and then start a normal schedule Monday - Friday.
I will let inform everybody how I am feeling during my treatment.
Saturday, March 14, 2009
Final Opinion
March 13, 2009 The trip went well to NY. We went on the 9:05 am train into Grand Central and then took a cab over to the doctors office. We arrived at the office at 11:00am. The building was gorgeous and you had to be buzzed in, to enter the building. There was a specular spiral staircase going upstairs where his office was. The detail work was an old style New York building that had its own special features to it. This was the doctors private office that he uses once every two weeks for clinics who fly in to see him or live closer to this office to travel too. His other office is at the hospital in Brooklyn, NY. I was seeing one of the top surgeon who is known world wide.
There was 4 people ahead of me in the gigantic waiting room. We waited a hour before we were called in to see the doctor. I saw the breast doctor as well as his two PA doctors. He asked me to explain why I was there to see him and then they examined me. His PA which was a women and himself took their time to examine my chest area one on each side, then they would switch. They had me lay down, sit up and change in different positions. It felt like it was five minutes but it was probably more 2-3 minuets. There was no exchange of words at the time so I was thinking what are they feeling for? He had me get dress and we met him for the review and consultation.
He called my cancer and plastic doctors while I was there and left a message for the both of them to review my case. He explained to me that I took an aggressive approach to remove both of the breast but wasn't the wrong approach. He is seeing this decision done more often in young women. I explained that my genetic test didn't come back until two days before my surgery and I had already made my mind up to remove both sides. He personally knows my plastic surgeon but only knew the name of my cancer doctor. He said that my surgery and implants was a world class operation. He has seen several patients over 18+ years and was impressed how well my chest looked. Wow that made me feel so great! He explained that many breast surgeons don't remove all the breast tissue under the skin and this is why alot of breast cancer reoccurs later on with alot of women. He said my cancer and plastic doctors did a terrific job. For my case, there is no question of any breast tissue left behind that shouldn't be there. This is why it seemed like he was examining me along time at the beginning but he was assuring me that all the breast tissue is gone and there were no other issues to worry about at this time.
He didn't agree with the doctor from Germany to perform the flap surgery. He has seen patients with the cancer in the margins but it isn't a common case. He said my margin is so thin and compared it to a potato chip. If I didn't do anything about my margin that there would be a 90% that the cancer wouldn't matisized. He mentioned if I was his sister or daughter that he would recommend to have the radiation treatment. That would cut the 10% chance down to 5% chance that the cancer would be gone in my margins. He asked where and what machine my radiation oncologist was using. I didn't know all the details for him. He wasn't familiar with radiation hospital that I was going to attend. He offered to be my "spy" and call the radiation doctor to see how the treatment was being performed and if the IMRT machine was available for my services. He said there was a difference how to treat an individual who had a mastectomy versus a lumpectomy. He is a passionate doctor to go out of his way to make the calls for me. I felt lucky to be seen by this doctor and for him to take the extra steps to help me in the right direction.
We also talked about my genetics test since my BRAC2 was inconclusive. I wanted his opinion about my ovaries for the future since this breast cancer can be linked to ovarian cancer. He was concerned that my moms test came back the same as mine and that I am the only family member that has breast cancer. He suggested for me to speak with the genetic counselor that works with him. She was coming to this office but she wouldn't be there for a couple of hours so I choose to speak with her over the phone probably in the next week. He mentioned that his patients blood work also goes to Myriad for the DNA genetic testing and that can't be change but this genetic counselor looks at the blood work in a different view and its worth speaking to her about my results. He was wondering if there would be a link/ concern not just for my own kids but my kids kids. I will definitely follow up with her.
He agreed I should go on Tamoxifen after the radiation treatment. The only concern he had was about my age and if I have several side effects on the medicine then it out ways being on the medicine and then I should be taken off it.
The doctor welcome me to come back at any time to see him for any concerns. He doesn't accept new patients at this time so I felt special that he offered this to me. I will wait this week to hear from my doctors about my meeting with this doctor and to wait and see about my radiation treatment.
There was 4 people ahead of me in the gigantic waiting room. We waited a hour before we were called in to see the doctor. I saw the breast doctor as well as his two PA doctors. He asked me to explain why I was there to see him and then they examined me. His PA which was a women and himself took their time to examine my chest area one on each side, then they would switch. They had me lay down, sit up and change in different positions. It felt like it was five minutes but it was probably more 2-3 minuets. There was no exchange of words at the time so I was thinking what are they feeling for? He had me get dress and we met him for the review and consultation.
He called my cancer and plastic doctors while I was there and left a message for the both of them to review my case. He explained to me that I took an aggressive approach to remove both of the breast but wasn't the wrong approach. He is seeing this decision done more often in young women. I explained that my genetic test didn't come back until two days before my surgery and I had already made my mind up to remove both sides. He personally knows my plastic surgeon but only knew the name of my cancer doctor. He said that my surgery and implants was a world class operation. He has seen several patients over 18+ years and was impressed how well my chest looked. Wow that made me feel so great! He explained that many breast surgeons don't remove all the breast tissue under the skin and this is why alot of breast cancer reoccurs later on with alot of women. He said my cancer and plastic doctors did a terrific job. For my case, there is no question of any breast tissue left behind that shouldn't be there. This is why it seemed like he was examining me along time at the beginning but he was assuring me that all the breast tissue is gone and there were no other issues to worry about at this time.
He didn't agree with the doctor from Germany to perform the flap surgery. He has seen patients with the cancer in the margins but it isn't a common case. He said my margin is so thin and compared it to a potato chip. If I didn't do anything about my margin that there would be a 90% that the cancer wouldn't matisized. He mentioned if I was his sister or daughter that he would recommend to have the radiation treatment. That would cut the 10% chance down to 5% chance that the cancer would be gone in my margins. He asked where and what machine my radiation oncologist was using. I didn't know all the details for him. He wasn't familiar with radiation hospital that I was going to attend. He offered to be my "spy" and call the radiation doctor to see how the treatment was being performed and if the IMRT machine was available for my services. He said there was a difference how to treat an individual who had a mastectomy versus a lumpectomy. He is a passionate doctor to go out of his way to make the calls for me. I felt lucky to be seen by this doctor and for him to take the extra steps to help me in the right direction.
We also talked about my genetics test since my BRAC2 was inconclusive. I wanted his opinion about my ovaries for the future since this breast cancer can be linked to ovarian cancer. He was concerned that my moms test came back the same as mine and that I am the only family member that has breast cancer. He suggested for me to speak with the genetic counselor that works with him. She was coming to this office but she wouldn't be there for a couple of hours so I choose to speak with her over the phone probably in the next week. He mentioned that his patients blood work also goes to Myriad for the DNA genetic testing and that can't be change but this genetic counselor looks at the blood work in a different view and its worth speaking to her about my results. He was wondering if there would be a link/ concern not just for my own kids but my kids kids. I will definitely follow up with her.
He agreed I should go on Tamoxifen after the radiation treatment. The only concern he had was about my age and if I have several side effects on the medicine then it out ways being on the medicine and then I should be taken off it.
The doctor welcome me to come back at any time to see him for any concerns. He doesn't accept new patients at this time so I felt special that he offered this to me. I will wait this week to hear from my doctors about my meeting with this doctor and to wait and see about my radiation treatment.
Thursday, March 12, 2009
Another Opinion
Hello everybody,
Gene and I will be going to New York tomorrow (3/13/09) to consult with the new breast surgeon doctor. He is going to review my case and let us know his opinion about the cancer in the margin of my right breast. I hope to have some kind of answers tomorrow or he might have to speak with my doctors to review. This will help us make a decision to move forward with my next treatment.
Gene and I will be going to New York tomorrow (3/13/09) to consult with the new breast surgeon doctor. He is going to review my case and let us know his opinion about the cancer in the margin of my right breast. I hope to have some kind of answers tomorrow or he might have to speak with my doctors to review. This will help us make a decision to move forward with my next treatment.
Sunday, March 8, 2009
MRI done and radiation on hold
Monday March 2, 2009 Any time I have a major appointment the weather doesn't treat me well. It snowed overnight into the morning about 7 inches and school was cancelled. My appointment was at 2:15 for my MRI. The snowed cleared up by the afternoon so I was able to change the time to 4:30. My husband came home early from work to drive me since I was going to take a Valium to help me relax. He dropped me off and took the kids shopping for about a hour. The appointment went well. They inserted the IV and I went into the machine. It took about 25 minutes in the MRI machine which was great because they said when patients have implants that it can take up to 35 minutes. The reason for this is because the machine sometimes has a hard time reading around them. I was relaxed and didn't cramped up this time! They were able to get all the pictures they needed.
Tuesday March 3, 2009 This day was hectic! My Radiation Oncologist called and said she needed to see the report from the MRI before I start my radiation for Wednesday. I called my cancer doctor and the place where I got my MRI several times to get the results as stat. I received a call at 4:30 from Radiation Oncologist and she said the MRI was okay and to show up for my appointment at 8:30 am tomorrow.
A hour can change your life. I spoke with my cancer doctor and she hasn't received my MRI results at this time. She also explained to me that she went to a seminar with my plastic surgeon to Germany the previous week. They presented my case to the doctor in which my plastic surgeon mentors from. They didn't have any of my records or films with them. They just discussed my case to see if he has ever encountered a situation like mine. He felt if I was his patient that he would perform the flap surgery. He is known internationally for his work My cancer doctor still wasn't sure if that's the right decision. She asked me not to start radiation this week and she will consult with all of my doctors to decide what is best decision. I received a call while I was on the phone that my MRI results were being fax over to her to review.
Thursday March 5, 2009 My cancer doctor called and explained that my treatment team feels that I am young and they would prefer to get one more opinion about my case. It's hard because they haven't had a patient that had a mastectomy and still have the cancer in the margin. She is going to contact a doctor she knows at Memorial Sloan Kettering Cancer Center in New York to get her opinion. She reviewed my MRI report and most of it seemed okay. My lymph nodes were a little swollen but it usually normal after surgery and I still had some fluid around my implants.
Friday March 6, 2009 I spoke with my plastic surgeon and she suggested that I see another opinion about my case. She worked and knows a breast surgeon who worked at Memorial Sloan Kettering Cancer Center in New York for 16 years. He is the Director of Brooklyn Breast Cancer Program, Maimonides Cancer Center, Brooklyn, NY at this time. She mentioned that he also knows the doctor who she spoke with in Germany. I will wait and hear back from the doctors hopefully next week. I expressed that I don't want to wait to long to decide what my next step will be in my treatment.
I will keep everybody posted as soon as I know.
Tuesday March 3, 2009 This day was hectic! My Radiation Oncologist called and said she needed to see the report from the MRI before I start my radiation for Wednesday. I called my cancer doctor and the place where I got my MRI several times to get the results as stat. I received a call at 4:30 from Radiation Oncologist and she said the MRI was okay and to show up for my appointment at 8:30 am tomorrow.
A hour can change your life. I spoke with my cancer doctor and she hasn't received my MRI results at this time. She also explained to me that she went to a seminar with my plastic surgeon to Germany the previous week. They presented my case to the doctor in which my plastic surgeon mentors from. They didn't have any of my records or films with them. They just discussed my case to see if he has ever encountered a situation like mine. He felt if I was his patient that he would perform the flap surgery. He is known internationally for his work My cancer doctor still wasn't sure if that's the right decision. She asked me not to start radiation this week and she will consult with all of my doctors to decide what is best decision. I received a call while I was on the phone that my MRI results were being fax over to her to review.
Thursday March 5, 2009 My cancer doctor called and explained that my treatment team feels that I am young and they would prefer to get one more opinion about my case. It's hard because they haven't had a patient that had a mastectomy and still have the cancer in the margin. She is going to contact a doctor she knows at Memorial Sloan Kettering Cancer Center in New York to get her opinion. She reviewed my MRI report and most of it seemed okay. My lymph nodes were a little swollen but it usually normal after surgery and I still had some fluid around my implants.
Friday March 6, 2009 I spoke with my plastic surgeon and she suggested that I see another opinion about my case. She worked and knows a breast surgeon who worked at Memorial Sloan Kettering Cancer Center in New York for 16 years. He is the Director of Brooklyn Breast Cancer Program, Maimonides Cancer Center, Brooklyn, NY at this time. She mentioned that he also knows the doctor who she spoke with in Germany. I will wait and hear back from the doctors hopefully next week. I expressed that I don't want to wait to long to decide what my next step will be in my treatment.
I will keep everybody posted as soon as I know.
Tuesday, February 24, 2009
Moving forward
I forgot to mentioned a few things from my last blog. In the radiation room ,they have two cameras on each side of the room so they can watch you, the machines, and also a microphone just in case you panic or need assistance.
My mom went with me to the doctors on Thursday February 19, 2009 to see the genetic doctor to review her medical history and to get her blood drawn. She will be screened to see if she has the gene BRAC1 and BRAC2 for breast/ovarian cancer. While she saw the genetic doctor, I saw my plastic surgeon down the hall. I will let you know the results when we get them. My mom also has found a website that helps women in need to get a free mammogram all you have to do is click onto this site. It has some great information on breast cancer please check out the site: http://www.thebreastcancersite.com/tpc/BCS_linktous
I am ready to plan my next six weeks of my life. I am scheduled for my MRI on Monday March 2, 2009 in the afternoon. This will be my baseline since I had my surgery. It will allow the doctors to compare to other MRI's in the future. I will make sure I stretch my neck, back, arms and take my Valium this time. My mom will be taking me since I will be taking some medication. I hope it goes smoothly, fast, and no cramps! I am not looking forward to this appointment now or in the future.
I will start my radiation on Wednesday March 4, 2009. I will have my sessions each day Monday - Friday at 8:30 am. I believe each time I will be under the machine for fifteen minutes. I will have to let you know.
We told our kids last night that I will be going to the hospital each morning to get radiation. We explained that I need some more treatment because I still have some cancer. My daughter asked if I will be staying at the hospital. I explained to her that she will have different people watching her each morning and I will be back to spend a few hours with her before she gets on the bus. I was surprised my son didn't ask any questions at the time. When my son went to bed he asked me if my mom or my sister has breast cancer. I told him not at this time, I am the only one but the doctors are doing the best they can to get me better.
My mom went with me to the doctors on Thursday February 19, 2009 to see the genetic doctor to review her medical history and to get her blood drawn. She will be screened to see if she has the gene BRAC1 and BRAC2 for breast/ovarian cancer. While she saw the genetic doctor, I saw my plastic surgeon down the hall. I will let you know the results when we get them. My mom also has found a website that helps women in need to get a free mammogram all you have to do is click onto this site. It has some great information on breast cancer please check out the site: http://www.thebreastcancersite.com/tpc/BCS_linktous
I am ready to plan my next six weeks of my life. I am scheduled for my MRI on Monday March 2, 2009 in the afternoon. This will be my baseline since I had my surgery. It will allow the doctors to compare to other MRI's in the future. I will make sure I stretch my neck, back, arms and take my Valium this time. My mom will be taking me since I will be taking some medication. I hope it goes smoothly, fast, and no cramps! I am not looking forward to this appointment now or in the future.
I will start my radiation on Wednesday March 4, 2009. I will have my sessions each day Monday - Friday at 8:30 am. I believe each time I will be under the machine for fifteen minutes. I will have to let you know.
We told our kids last night that I will be going to the hospital each morning to get radiation. We explained that I need some more treatment because I still have some cancer. My daughter asked if I will be staying at the hospital. I explained to her that she will have different people watching her each morning and I will be back to spend a few hours with her before she gets on the bus. I was surprised my son didn't ask any questions at the time. When my son went to bed he asked me if my mom or my sister has breast cancer. I told him not at this time, I am the only one but the doctors are doing the best they can to get me better.
Sunday, February 22, 2009
Three doctors appointments this week
Monday 2/16/09 I went to get my mold fitted for when I start my radiation. I guess you should never assume where the mold was going to be placed. I assumed it was going to go over my breast but I was wrong it was behind my head. I had to lay on my back with my hands placed behind my head and I had to hold onto a pole, chin and head up to the left and lay on a mat that was referred to like a bean bag. The radiation specialist hooked up a hose to the bean bag and started to form the mold. I will lay in this mold each day for my treatment. This mold keeps me in the same position while the radiation is being performed and verifies that the treatment is performed the same way each time. I was moved into the machine to verify the mold and me fit into the machine. The Radiation Oncologist doctor came in and placed several stickers on my breast before the scan. They also marked my chest with a blue marker to know where to line up the laser in the correct positions. They marked both sides of my breast and the middle of my chest. They placed clear round stickers over these markings and asked me not to wash them off. Its lovely to see all the marks in the mirror! A cat scan was performed for about five minutes. This time it wasn't as bad as my MRI in November. The sounds were not as loud, I was laying on my back not my front, and the time was much shorter! I am a little nervous when my treatments start that my neck might get sore from being in the same position so I will have to remember to stretch before I have to lay there for about 15 minutes. The molding will be finished by the doctor off my cat scan and I will return to verify the fit of the molding. I had to go to a different area in the hospital to get a blood test done before I left.
Thursday 2/19/09 I saw my plastic surgeon today. She said I am healing well and that my breasts look good. She removed one stitch that was sticking out. I showed her the bras that she recommend that I wear to verify the correct fit. The bras are designed for individuals who work out. They are comfortable and rated by bars which means the support in the straps. The prices range from $32-$70 but they are worth it. They are breathable and can be worn for workouts or during the day. If you would like to check out the website, here it is: http://www.titlenine.com/ The company is only in a few states so you will need to order over the net/phone. The bras are tight fitting so you can't go off the sizes exactly, order a little bigger. I am sending mine back for bigger sizes. The company guarantees the bras and will exchange/return at any time which is a great policy. They give you a label to send them back and will not charge you for another shipping fee. We talked a little bit about my radiation. She said once I start my radiation (since I don't have a start date) I will need to see her about 3-4 weeks into the treatment. She took a few pictures of my breast so she will have the before and after pictures. Please pray for me that the radiation will not harm my skin elasticity and that my implants will not need to be removed. She mentioned if I have a bad rash or irritation, not to wear my bra.
Friday 2/20/09 I haven't told my kids that I have to get radiation. I wanted to wait for a start date and I didn't want their minds to worry. As soon as I know a start date, we will explain to them what I am going to have to go through. I am waiting for my menstrual cycle to start (yea what all women look forward too) and then I can schedule my MRI a week later after it starts then I can start radiation a few days after. Since I didn't want my kids to hear about another doctors appointment this week, they went to a friends house and I told them I was going out to do some errands today. I returned back to the radiation office at the hospital where I will be having my treatments. This appointment was suppose to be 30 minutes and I ended up being there for 1 hour and 45 minutes. All I can think was " I can't believe this is what I will have to experience every day every week! I was sitting in the waiting room listening to older ladies and men talking. They were there for radiation and they must of seen each other for several weeks since they have the appointments around the same time and knew each other. I felt like they were looking at me saying why is she here, she is so young. These women were talking about their grandchildren. This made me feel lucky that I caught my cancer so early but also made me think wow I have cancer at my age 37 and I feel like an odd one at this moment. Its still hard to believe I have cancer since I feel great and I don't feel any lumps or any other signs. The nurse finally called me in and apologized about the wait. She explained this isn't usually this long of wait. I was brought into the radiation room and a simulation run will be performed to make sure everything is in tact for radiation. I was placed in the mold and it was made correctly. I had to lay there for 30 minutes being still without moving. They took several pictures of the breast while the laser machine moved around to different angles. They were in and out of the room. When you are in a position that you cant move, the time is forever. There is music on in the room and I am starring at a skylight that has a pretty a tree with a bloom of pink petals on it but I still wish I didn't need to be there. My eye started to tear (not crying just allergies) and I couldn't wipe it! All I could think is my nose is going to itch and I am not going to be able to help myself at this stage. This is a bad feeling. I hope these 5 1/2 weeks go by fast. The test were all performed and it wasn't as bad as I thought it would be laying there. They marked me with additional blue markings and asked me again not to remove them. They also place three tattoo markings the size of a freckle on each side of the breast and in the middle of the chest. This will help them to line the laser each day for radiation. These tattoos will remain on my body forever, they will fade over time. I have so many blue marks that I can't see them at this time. I have scheduled my radiation appointments to start the first week of March. This way I have a time slot and I can call them to determine the exact day. The appointments will be at 8:30am in the morning. It stinks to go early but she said I wouldn't wait more than 5 minutes so its worth that each day! They gave me a parking pass so I don't have to pay each day. I was not to excited to hear when I start my treatments that I can't wear deodorant or shave under my right arm while I am having radiation. I was grossed out about this. She mentioned if I have to I can buy only one brand of a natural deodorant. It is lucky that I am not doing this during the summer! The reason for this is because there might be some metals/aluminium in the deodorants, shaving creams or lotions that can affect the treatment.
Sorry so long but a lot of information for three appointments.
Thursday 2/19/09 I saw my plastic surgeon today. She said I am healing well and that my breasts look good. She removed one stitch that was sticking out. I showed her the bras that she recommend that I wear to verify the correct fit. The bras are designed for individuals who work out. They are comfortable and rated by bars which means the support in the straps. The prices range from $32-$70 but they are worth it. They are breathable and can be worn for workouts or during the day. If you would like to check out the website, here it is: http://www.titlenine.com/ The company is only in a few states so you will need to order over the net/phone. The bras are tight fitting so you can't go off the sizes exactly, order a little bigger. I am sending mine back for bigger sizes. The company guarantees the bras and will exchange/return at any time which is a great policy. They give you a label to send them back and will not charge you for another shipping fee. We talked a little bit about my radiation. She said once I start my radiation (since I don't have a start date) I will need to see her about 3-4 weeks into the treatment. She took a few pictures of my breast so she will have the before and after pictures. Please pray for me that the radiation will not harm my skin elasticity and that my implants will not need to be removed. She mentioned if I have a bad rash or irritation, not to wear my bra.
Friday 2/20/09 I haven't told my kids that I have to get radiation. I wanted to wait for a start date and I didn't want their minds to worry. As soon as I know a start date, we will explain to them what I am going to have to go through. I am waiting for my menstrual cycle to start (yea what all women look forward too) and then I can schedule my MRI a week later after it starts then I can start radiation a few days after. Since I didn't want my kids to hear about another doctors appointment this week, they went to a friends house and I told them I was going out to do some errands today. I returned back to the radiation office at the hospital where I will be having my treatments. This appointment was suppose to be 30 minutes and I ended up being there for 1 hour and 45 minutes. All I can think was " I can't believe this is what I will have to experience every day every week! I was sitting in the waiting room listening to older ladies and men talking. They were there for radiation and they must of seen each other for several weeks since they have the appointments around the same time and knew each other. I felt like they were looking at me saying why is she here, she is so young. These women were talking about their grandchildren. This made me feel lucky that I caught my cancer so early but also made me think wow I have cancer at my age 37 and I feel like an odd one at this moment. Its still hard to believe I have cancer since I feel great and I don't feel any lumps or any other signs. The nurse finally called me in and apologized about the wait. She explained this isn't usually this long of wait. I was brought into the radiation room and a simulation run will be performed to make sure everything is in tact for radiation. I was placed in the mold and it was made correctly. I had to lay there for 30 minutes being still without moving. They took several pictures of the breast while the laser machine moved around to different angles. They were in and out of the room. When you are in a position that you cant move, the time is forever. There is music on in the room and I am starring at a skylight that has a pretty a tree with a bloom of pink petals on it but I still wish I didn't need to be there. My eye started to tear (not crying just allergies) and I couldn't wipe it! All I could think is my nose is going to itch and I am not going to be able to help myself at this stage. This is a bad feeling. I hope these 5 1/2 weeks go by fast. The test were all performed and it wasn't as bad as I thought it would be laying there. They marked me with additional blue markings and asked me again not to remove them. They also place three tattoo markings the size of a freckle on each side of the breast and in the middle of the chest. This will help them to line the laser each day for radiation. These tattoos will remain on my body forever, they will fade over time. I have so many blue marks that I can't see them at this time. I have scheduled my radiation appointments to start the first week of March. This way I have a time slot and I can call them to determine the exact day. The appointments will be at 8:30am in the morning. It stinks to go early but she said I wouldn't wait more than 5 minutes so its worth that each day! They gave me a parking pass so I don't have to pay each day. I was not to excited to hear when I start my treatments that I can't wear deodorant or shave under my right arm while I am having radiation. I was grossed out about this. She mentioned if I have to I can buy only one brand of a natural deodorant. It is lucky that I am not doing this during the summer! The reason for this is because there might be some metals/aluminium in the deodorants, shaving creams or lotions that can affect the treatment.
Sorry so long but a lot of information for three appointments.
Saturday, February 14, 2009
We met with the Radiation Oncologist
My husband and I met with the Radiation Oncologist this week. She explained to us like all the other doctors that I am an unusual case and there is no guidelines to follow. I will have radiation treatments on my right side of the breast for 5 1/2 weeks Monday - Friday. If for some reason, I had to miss a day for snow or the kids home due to illness then the time I missed will be added to the end of my treatment. The actual radiation treatment will take about 10-15 minutes each day. It will take me longer to drive there and get ready. Once a week, I will need to stay an extra 15-20 minutes for pictures to be taken. These pictures will not be able to see inside of my body but will verify the mold is in the correct position each time and the radiation is targeting the correct area. I don't know the start date but probably will be in a few weeks. I have to get a MRI done for a base line and I am still sore to lay on my front side. A few weeks will allow my stitches to be healed completely. The MRI might not show the cancer in my margins but can help for the future when I need to verify any other markers for cancer or if I feel a lump. (We will pray that the cancer will not come back) On Monday 2/16/09, I am going back to the Radiation Oncologist to have a cat-scan of the breast so she can start to make a mold to cover the breast area during radiation. The mold will be completed during the week. This appointment will take about a hour. I will then have another appointment to come back and try on the mold to verify it fits and then I will be ready when the radiation starts. This mold will be worn during the radiation. She will let me know the two different kind of lotions that I will need to mix together and apply to the skin area at least twice a day. I will be able to drive myself back and fourth to get the radiation done. I would like to make my appointments in the morning so I have the afternoon to rest. I will make arrangements to have my daughter watched since she is home in the morning. She has afternoon kindergarten.
She explained the side effects that can happened: less energy(will need to take naps), redness, itchy, sunburn feeling, swelling of the breast, discolor of the skin temporary, peeling or dry skin . My full energy will take a few months to get back after the radiation is completed.
We haven't told the kids that I have to go through radiation. We will wait until I have a start date. We will then have to explain why I have to due this process. We want to tell them the truth but will have to be careful with the wording because we don't want them to get scared and ask if I am going to die. That was so heart breaking last time but as a young child this is what goes through their mind!!! I will have my husband do the talking so I don't start to cry.
I will start the medication after the radiation is completed.
I also saw my cancer surgeon this week. She said my stitches are healing good and everything looks well. The stitches are disposable but she did trim a few of them. I will see my plastic surgeon next week.
She explained the side effects that can happened: less energy(will need to take naps), redness, itchy, sunburn feeling, swelling of the breast, discolor of the skin temporary, peeling or dry skin . My full energy will take a few months to get back after the radiation is completed.
We haven't told the kids that I have to go through radiation. We will wait until I have a start date. We will then have to explain why I have to due this process. We want to tell them the truth but will have to be careful with the wording because we don't want them to get scared and ask if I am going to die. That was so heart breaking last time but as a young child this is what goes through their mind!!! I will have my husband do the talking so I don't start to cry.
I will start the medication after the radiation is completed.
I also saw my cancer surgeon this week. She said my stitches are healing good and everything looks well. The stitches are disposable but she did trim a few of them. I will see my plastic surgeon next week.
Saturday, February 7, 2009
New treatment
I received a call from my cancer surgeon late in the day and she spoke with the oncologist from Yale. My oncologist who I will be seeing was also included with the conversation. The outcome from Yale's board was the same as my doctors board for my treatment. I will need to have radiation five times a week for six weeks. I will go on the Tamoxifen medication after the radiation is completed for the five years.
I was happy to hear that the consensus was the same from Yale and my board of doctors because that makes the decision easy. I don't have to additional opinions or know what doctor to believe. I am starting to go in the right direction.
I would like to get this process started so I immediately called and made an appointment with the radiation oncologist for my consultation for Monday February 9. During this appointment, she will review my medical paperwork, review my surgery, and map out the area in which I will need to have the radiation treatment. She will consult with my cancer surgeon after my appointment to see when the radiation will start. It could be as early as two weeks. I will explain the process and type of radiation I will be given after I have my appointment. The side effects are usually temporary and should go away after treatment ends.
Skin irritation similar to sun burn.
Mild to moderate breast swelling.
Fatigue during the treatment-need to get plenty of rest during the treatment
A few women report mild tenderness in the breast or chest wall. This will slowly get better over time.
Scarring of a small part of the lung just under the breast. This generally does not cause side effects.
Many of these side effects can be controlled with medications.
We will all pray for me and hope for the best that my implant will not be affected by the radiation. I am going to fall under the 60% chance that my right implant (since radiation is only needed on the right side) will be great !!!
There is a 40% chance that the skin elasticity from the radiation will not support the implant. This is not common but can occur. We will wait six months after the radiation to make sure the skin has healed completely then I can get the nipples put on. This will be an out patient procedure.
My doctors would like me to have another MRI before I start my radiation to have a baseline of the margin area and to have a MRI too compare to in the future. I will have to wait over the next few weeks to see if I am to sore to have this MRI. I will have to lay on my stomach and my breast are still sore and sensitive. I am still sleeping on my back and try to sleep on my sides but have some pain still. I am not a back sleeper so I can't wait to sleep on my side all the time!!!
I did not see my cancer surgeon or plastic surgeon this week to examine my stitches so I will need to see them this week.
I will follow up with my doctor for additional questions we had for the Yale board this week. Some of the issues that we were concerned with included my findings on my genetic test (should other family members have the test performed), treatment going forward after my radiation, blood screening test, how my ovaries will be monitored and any other concerns that the doctors had suggested.
Wednesday, February 4, 2009
doctor visit
My husband and I went to Yale yesterday and met with the Oncologist. The meeting was informative and she reviewed my entire medical history. She felt maybe no radiation and going on Tamoxifen for 5 years which will decrease my cancer reacquiring and might cure the cancer in my margin.
(Tamoxifen is a drug, taken orally as a tablet, which interferes with the activity of estrogen, a female hormone. Estrogen can promote the development of cancer in the breast. Estrogen can promote the growth of breast cancer cells. Some breast cancers are classified as estrogen receptor-positive (also known as hormone sensitive), which means that they have a protein to which estrogen will bind. These breast cancer cells need estrogen to grow. Tamoxifen works against the effects of estrogen on these cells. It is often called an antiestrogen or a SERM )
She wants to discuss my case with other medical professionals. My case is unusual so there is not a direct answer at this time. She requested additional information from my cancer surgeon to present to the board. The board at Yale is meeting this evening and she will present my case to about 8 other doctors within the breast cancer medical field. I hope to get their opinion by Friday.
She was informative and recommended some test that I will be doing soon with my Oncologist to prevent cancer in the future. I will be meeting with him probably next week.
I will update the information as soon as I know more, this is a long process but we want to get the best possible cure.
(Tamoxifen is a drug, taken orally as a tablet, which interferes with the activity of estrogen, a female hormone. Estrogen can promote the development of cancer in the breast. Estrogen can promote the growth of breast cancer cells. Some breast cancers are classified as estrogen receptor-positive (also known as hormone sensitive), which means that they have a protein to which estrogen will bind. These breast cancer cells need estrogen to grow. Tamoxifen works against the effects of estrogen on these cells. It is often called an antiestrogen or a SERM )
She wants to discuss my case with other medical professionals. My case is unusual so there is not a direct answer at this time. She requested additional information from my cancer surgeon to present to the board. The board at Yale is meeting this evening and she will present my case to about 8 other doctors within the breast cancer medical field. I hope to get their opinion by Friday.
She was informative and recommended some test that I will be doing soon with my Oncologist to prevent cancer in the future. I will be meeting with him probably next week.
I will update the information as soon as I know more, this is a long process but we want to get the best possible cure.
Sunday, February 1, 2009
waiting period
Hello,
I went to see my doctors last Thursday and my stitches are healing well. My pain that I have been feeling in my left breast is due to nerves possibility where the botox didn't get distributed to help reduce the pain. Its nothing abnormal but I get sharp pains from time to time during the day and it has been very frustrating. The sore under my left breast is also getting better but will take several weeks to heal. I am getting a little itchy because I want to know my health path ahead of me but I have to wait for the additional opinions. I want the best care but its frustrating to wait during the process knowing that I still have cancer. I am also having more pain in my arm pits where the lymph nodes were removed. It's because the muscles/ nerves are starting to repair back within that area. I attended a support group on Monday night which the other ladies also had breast cancer. Each person has a different case but it was good to hear the different options I might face going forward. The meeting meets every other week and I might attend the next meeting to get some additional information about breast cancer. I have my 3rd opinion at Yale on Tuesday, lets pray the big snow storm doesn't come. It seems like every time I have to go to the hospital or doctors it snows.
I would like to thank all my family and friends that have supported me during this difficult time. The phone calls, cards, emails, visits, dinners, and gifts mean a lot to me and my family. Its nice to know that you support my family during the worst times in our lives. I will beat this cancer but unfortunately its not going to be a quick process. I will keep all of you updated as much as I can going forward. Remember it makes a difference to be positive and live your life to the fullest as much as you can each day! We all have our days that are bad but there are always worst situations out there. Take Care!!!
I went to see my doctors last Thursday and my stitches are healing well. My pain that I have been feeling in my left breast is due to nerves possibility where the botox didn't get distributed to help reduce the pain. Its nothing abnormal but I get sharp pains from time to time during the day and it has been very frustrating. The sore under my left breast is also getting better but will take several weeks to heal. I am getting a little itchy because I want to know my health path ahead of me but I have to wait for the additional opinions. I want the best care but its frustrating to wait during the process knowing that I still have cancer. I am also having more pain in my arm pits where the lymph nodes were removed. It's because the muscles/ nerves are starting to repair back within that area. I attended a support group on Monday night which the other ladies also had breast cancer. Each person has a different case but it was good to hear the different options I might face going forward. The meeting meets every other week and I might attend the next meeting to get some additional information about breast cancer. I have my 3rd opinion at Yale on Tuesday, lets pray the big snow storm doesn't come. It seems like every time I have to go to the hospital or doctors it snows.
I would like to thank all my family and friends that have supported me during this difficult time. The phone calls, cards, emails, visits, dinners, and gifts mean a lot to me and my family. Its nice to know that you support my family during the worst times in our lives. I will beat this cancer but unfortunately its not going to be a quick process. I will keep all of you updated as much as I can going forward. Remember it makes a difference to be positive and live your life to the fullest as much as you can each day! We all have our days that are bad but there are always worst situations out there. Take Care!!!
Wednesday, January 28, 2009
I received my appt for 3rd opinion
Sorry, I know its been more then a few days since I updated my blog. I didn't have any solid answers so I was waiting before I added more information. I had a great dinner and it was nice to get out of the house to socialize with adults. Some of my husband's co-workers were surprise to see me but why stay home when I feel well and I am living my life as much as I can. Earlier in the day, I picked up my kids from the bus stop for the first time and they were excited to see me which was a good feeling for all of us. I drove for the first time to do a few errands afterwards with the kids. It was awesome to drive again. You don't realize how much you miss something until you can't do it.
My doctors suggested to get a 3rd opinion about the cancer in my breast margin to verify what my doctors have decided is what the others doctors might agree with. The original oncologist I was going to see at Yale will not be available until February 11. She travels around nationally because she works on non- clinical research for breast cancer. She has all my paperwork and will review my case when she gets some time. I have an appointment to see her partner oncologist on Tuesday February 3, 2009. I spoke with my oncologist tonight who I will be seeing going forward and he was comfortable who I will be seeing. He explained the best outcome that will come out for me seeing another doctor at Yale is that the oncologist will review my case with me and will also bring my case to the weekly board meeting with several speciality doctors at Yale to review. This group meets once a week so I will benefit to get additional Yale surgeon doctors review my case as well. My case is not as common as other patients so he explained that the doctors might not have a solid decision but the more opinions we get the better my treatment will be. I hopefully will have all the final reports within the next few weeks. He believes that waiting a few weeks will not be a harm to my cancer and will not spread. I will see my oncologist when all the results are in for our decision.
Tomorrow January 29,2009 I am going to go see my cancer surgeon and possibility my plastic doctor to look at my stitches and healing process. I still have the sore under my left breast but the medication the doctor prescribed as helped and I will continue to apply until its healed. My left breast has been bothering quite a bit. At times I get sharp pains throughout my breast. I am not sure if its the stitches or nerves. I will be talking to the doctor about it tomorrow. I have to take my pain medication at night to help me sleep since it bothers me so much. I now sleep in my bed which is nice but I still can only sleep on my back. I want to sleep on my side so bad but my front of my chest is still sore. Time for bed and rest!
My doctors suggested to get a 3rd opinion about the cancer in my breast margin to verify what my doctors have decided is what the others doctors might agree with. The original oncologist I was going to see at Yale will not be available until February 11. She travels around nationally because she works on non- clinical research for breast cancer. She has all my paperwork and will review my case when she gets some time. I have an appointment to see her partner oncologist on Tuesday February 3, 2009. I spoke with my oncologist tonight who I will be seeing going forward and he was comfortable who I will be seeing. He explained the best outcome that will come out for me seeing another doctor at Yale is that the oncologist will review my case with me and will also bring my case to the weekly board meeting with several speciality doctors at Yale to review. This group meets once a week so I will benefit to get additional Yale surgeon doctors review my case as well. My case is not as common as other patients so he explained that the doctors might not have a solid decision but the more opinions we get the better my treatment will be. I hopefully will have all the final reports within the next few weeks. He believes that waiting a few weeks will not be a harm to my cancer and will not spread. I will see my oncologist when all the results are in for our decision.
Tomorrow January 29,2009 I am going to go see my cancer surgeon and possibility my plastic doctor to look at my stitches and healing process. I still have the sore under my left breast but the medication the doctor prescribed as helped and I will continue to apply until its healed. My left breast has been bothering quite a bit. At times I get sharp pains throughout my breast. I am not sure if its the stitches or nerves. I will be talking to the doctor about it tomorrow. I have to take my pain medication at night to help me sleep since it bothers me so much. I now sleep in my bed which is nice but I still can only sleep on my back. I want to sleep on my side so bad but my front of my chest is still sore. Time for bed and rest!
Friday, January 23, 2009
Thursday 1/23/09 doctor's appointment
I first met with my plastic surgeon doctor yesterday morning. The first exciting news was that my last two drainage tubes were removed. Yea!!! I was so happy to get them out. The tubes were uncomfortable to move around with them, had drain them twice a day, hide them from my kids and were starting to itch and really bother me. I had to record the amount of fluid from each tube each day that was coming out and the doctor was surprise to see the number low (under 24cc for at least 24 hours) to have them removed. My number was low for 48 hours. The doctor said that was great because most people will have the last two tubes in for an average of 3-4 weeks.
I will give all the details later today in my blog or tomorrow but I know a lot of you wanted to know what the doctors had decided. The board of doctors which includes breast surgeons, oncologist, genetics, mammogram specialist , plastic surgeons, cancer specialist, and many more doctors reviewed my case and felt that the best care for my situation at this time would probably be radiation. The doctors feel comfortable in their decision but would like me to get a third opinion. I will see an oncologist at Yale that has never been involved with my case to read all of my records, slides, review my surgeries, pathology reports, mammograms, genetics test and also see me in person. Hopefully I will get that appointment date today.
I will update more as soon as I can. Now that I have the drainage tubes out I can take a shower without plastic wrapped around me. Gene's Xmas party was cancelled back in December because we were having a bad snow storm and has been rescheduled for tonight. I will be attending the dinner tonight and this will be good for me to get out of the house and social.
I will give all the details later today in my blog or tomorrow but I know a lot of you wanted to know what the doctors had decided. The board of doctors which includes breast surgeons, oncologist, genetics, mammogram specialist , plastic surgeons, cancer specialist, and many more doctors reviewed my case and felt that the best care for my situation at this time would probably be radiation. The doctors feel comfortable in their decision but would like me to get a third opinion. I will see an oncologist at Yale that has never been involved with my case to read all of my records, slides, review my surgeries, pathology reports, mammograms, genetics test and also see me in person. Hopefully I will get that appointment date today.
I will update more as soon as I can. Now that I have the drainage tubes out I can take a shower without plastic wrapped around me. Gene's Xmas party was cancelled back in December because we were having a bad snow storm and has been rescheduled for tonight. I will be attending the dinner tonight and this will be good for me to get out of the house and social.
Monday, January 19, 2009
waiting period
The genetics test came back and the results were in a positive direction. There were two DNA genes that were tested for the gene mutation which were the 7Th and 13TH DNA. The test focused on BRAC1 which the results came back negative and BRAC2 which came back inconclusive. These results were good meaning I don't have a high risk to carry the gene mutation for ovarian cancer but doesn't mean I am clear that I won't have a possibility to get it. At this point it seems like this is not a hereditary case. There is a very small percentage that comes back inconclusive like my BRAC2 did and this means they can't say yes or no but the percentage is 98.5 that its okay. I will be following up with an oncologist and I am sure he will be doing several test in the future to help maintain and to prevent no cancer to come back.
I am feeling okay. I am taking less pain medication during the day which is good. I am very itchy which is good sign for healing but bothers me a lot. I still have two tubes on my sides so they tend to be itchy, in the way for my clothing and hard to be hidden for the kids in which I don't want them to see and I can't wait until they can come out! I have to empty them morning and night. Last week when I went for my routine check-up I saw the plastic surgeon and the cancer doctor. They remove all the taping off my incisions. My right side of my breast is healing well. My left side had a sore which is either a reaction from the tape, bra or just some irritation. I have to put a special cream around that area 2-3 times a day. My left breast seems to be not healing as fast as my right side and needs to be gauze up everyday. I wish the right was the one not healing instead of the left since it seems like the right side might have the possibility to be redone.
I will go back to the doctors on Thursday to find out the results that the board has decided what will be the best decision on how to handle my case. It might be radiation, surgery to remove the margin of the breast skin area or maybe they will come up with another idea. Both of my breast were removed and this case is not a situation where the doctor missed an area for cancer. She took extra steps and removed several margins under my skin which is considered part of the breast. She sent both of my breast and cells under my skin to the lab to verify 100% that all the cancer has been removed and to detect if there were any other signs for cancer. Unfortunately on my right side, it showed a high amount of cancer still in the margin on my upper right chest area. The doctor wants to make the best decision to make sure there is no risk of any cancer that can spread.
I will update everybody at the end of the week with the latest news.
I am feeling okay. I am taking less pain medication during the day which is good. I am very itchy which is good sign for healing but bothers me a lot. I still have two tubes on my sides so they tend to be itchy, in the way for my clothing and hard to be hidden for the kids in which I don't want them to see and I can't wait until they can come out! I have to empty them morning and night. Last week when I went for my routine check-up I saw the plastic surgeon and the cancer doctor. They remove all the taping off my incisions. My right side of my breast is healing well. My left side had a sore which is either a reaction from the tape, bra or just some irritation. I have to put a special cream around that area 2-3 times a day. My left breast seems to be not healing as fast as my right side and needs to be gauze up everyday. I wish the right was the one not healing instead of the left since it seems like the right side might have the possibility to be redone.
I will go back to the doctors on Thursday to find out the results that the board has decided what will be the best decision on how to handle my case. It might be radiation, surgery to remove the margin of the breast skin area or maybe they will come up with another idea. Both of my breast were removed and this case is not a situation where the doctor missed an area for cancer. She took extra steps and removed several margins under my skin which is considered part of the breast. She sent both of my breast and cells under my skin to the lab to verify 100% that all the cancer has been removed and to detect if there were any other signs for cancer. Unfortunately on my right side, it showed a high amount of cancer still in the margin on my upper right chest area. The doctor wants to make the best decision to make sure there is no risk of any cancer that can spread.
I will update everybody at the end of the week with the latest news.
Friday, January 16, 2009
latest update
Hi,
These last few days have been busy and I will fill everybody in about the minor stuff but wanted to get the update information about the doctors. My sister in law has been here all week helping with the kids, cooking, and assisting me so that has been helpful. My mom has been doing some of my errands for me so the week and has been great. The week has been going by fast.
The genetic test did come back and for the most part 98.5 its negative for the gene mutation for ovarian cancer but there is a small percentage that I am going to explain in a later blog. This is in a good positive direction.
I went to the doctor yesterday 1/15/09 and this is the latest new:
I will be honest with you these last two days have been hectic and yesterday was hard to hear the news at the doctor's. I was okay at the office and last evening it made me upset. I am updating my blog so I don't have to talk much about it.
I did get two of my drains out today which was great and my lymph nodes final test is negative for cancer. That was the best news! My left breast was also negative for cancer. I did have a very small 4ml invasive cancer in my lower right breast but its removed and no other sign of invasive cancer is in my body since I have chosen to remove it. This is a cleared situation. At this point that is not the doctors main concern. At the top of your breast which leads up to your upper chest area the doctor took off a hug amount of breast cells under the skin to be tested. This test has came back as cancer level 1 on my right breast which is called the margin. Its not skin cancer but still part of breast cancer. I still have a very thin layer of breast cells under my skin that will need to be removed. Its a vary large amount 2-3 inches. At this time we don't know if I will have radiation or remove the entire skin area which will be back into surgery. My case is going to go to the medical dispensary review board on Wednesday which includes several doctors in several areas of medical fields and they will discuss which will be my best care to handle this situation. I will go back to the doctors on Thursday 1/22 to review what decision I will be doing. I don't need to have all my scars/stitches healed for surgery and this will be done within a month. Its a lot to absorb and other issues will be discussed later as far as reconstruction because now the left and right side will be different sizes and we will have to decide how we will handle the implants. At this time the doctor wants to focus on the breast cell cancer and how to take care of it. At this time this is in a local area and has not spread but we want to react before this is an issue.
I appreciate that everybody has supported my family and me during these hectic times and I will get through this but some times I am strong and other times I have some lows. This has been a lot to absorb for all of us. I will update more as soon as I can. Take Care!
These last few days have been busy and I will fill everybody in about the minor stuff but wanted to get the update information about the doctors. My sister in law has been here all week helping with the kids, cooking, and assisting me so that has been helpful. My mom has been doing some of my errands for me so the week and has been great. The week has been going by fast.
The genetic test did come back and for the most part 98.5 its negative for the gene mutation for ovarian cancer but there is a small percentage that I am going to explain in a later blog. This is in a good positive direction.
I went to the doctor yesterday 1/15/09 and this is the latest new:
I will be honest with you these last two days have been hectic and yesterday was hard to hear the news at the doctor's. I was okay at the office and last evening it made me upset. I am updating my blog so I don't have to talk much about it.
I did get two of my drains out today which was great and my lymph nodes final test is negative for cancer. That was the best news! My left breast was also negative for cancer. I did have a very small 4ml invasive cancer in my lower right breast but its removed and no other sign of invasive cancer is in my body since I have chosen to remove it. This is a cleared situation. At this point that is not the doctors main concern. At the top of your breast which leads up to your upper chest area the doctor took off a hug amount of breast cells under the skin to be tested. This test has came back as cancer level 1 on my right breast which is called the margin. Its not skin cancer but still part of breast cancer. I still have a very thin layer of breast cells under my skin that will need to be removed. Its a vary large amount 2-3 inches. At this time we don't know if I will have radiation or remove the entire skin area which will be back into surgery. My case is going to go to the medical dispensary review board on Wednesday which includes several doctors in several areas of medical fields and they will discuss which will be my best care to handle this situation. I will go back to the doctors on Thursday 1/22 to review what decision I will be doing. I don't need to have all my scars/stitches healed for surgery and this will be done within a month. Its a lot to absorb and other issues will be discussed later as far as reconstruction because now the left and right side will be different sizes and we will have to decide how we will handle the implants. At this time the doctor wants to focus on the breast cell cancer and how to take care of it. At this time this is in a local area and has not spread but we want to react before this is an issue.
I appreciate that everybody has supported my family and me during these hectic times and I will get through this but some times I am strong and other times I have some lows. This has been a lot to absorb for all of us. I will update more as soon as I can. Take Care!
Wednesday, January 14, 2009
Going home from the hospital
Friday January 9, 2009
As usual I was woken up early for my morning medications around 5:30am. I was assuming that my cancer and plastic doctor were in surgery all day so I did not know when I would be discharged. I ate my breakfast and was watching some TV. I guess the medications made me sleepy and I dosed off. I was woken up at 9:00am with both of my doctors to examine me and said I was recovering well and can go home. They informed all of the nurses to get all the paperwork ready for my discharged. I called Gene and he was surprised my doctors already seen me. Emily wanted her dad to get her on the bus for her kindergarten since he is normally at work and I was okay with that. This allowed me to slowly get my things together and have some lunch before I leave. The nurses and doctors were all great during my stay. They attended to all my needs and even gave me some extras as well to take home.
I came home and was tired so I decided to take nap before the kids get off the bus. The kids were excited to see me when they got home. My mom stopped by and gave me some supplies I needed and then my sister in law arrived early evening. It was a nice night and I slept in our new chairs. I slept much better in my own surroundings rather then the hospital.
Saturday January 10, 2009
I woke up not feeling so good. Gene had taken my temperature and I was 101.3, We placed a call to my cancer doctor and said she would like us to speak with the plastic surgeon for some possibilities I am having a reaction to the implants. I didn't have any other signs of a sore throat, redness in my chest area, swelling of the legs, just a bad headache. The only medication I could take was Tylenol. She told me to rest and to call her if the fever gets higher because I might have to go back into the hospital tomorrow to run some testes. I felt better during the day and the fever did go away. I did sleep with an electric blanket on me the previous night so maybe that was a contributing factor. Both of my doctors called to check up on me later in the day to make sure I was feeling okay. The rest of the day and night was okay.
As usual I was woken up early for my morning medications around 5:30am. I was assuming that my cancer and plastic doctor were in surgery all day so I did not know when I would be discharged. I ate my breakfast and was watching some TV. I guess the medications made me sleepy and I dosed off. I was woken up at 9:00am with both of my doctors to examine me and said I was recovering well and can go home. They informed all of the nurses to get all the paperwork ready for my discharged. I called Gene and he was surprised my doctors already seen me. Emily wanted her dad to get her on the bus for her kindergarten since he is normally at work and I was okay with that. This allowed me to slowly get my things together and have some lunch before I leave. The nurses and doctors were all great during my stay. They attended to all my needs and even gave me some extras as well to take home.
I came home and was tired so I decided to take nap before the kids get off the bus. The kids were excited to see me when they got home. My mom stopped by and gave me some supplies I needed and then my sister in law arrived early evening. It was a nice night and I slept in our new chairs. I slept much better in my own surroundings rather then the hospital.
Saturday January 10, 2009
I woke up not feeling so good. Gene had taken my temperature and I was 101.3, We placed a call to my cancer doctor and said she would like us to speak with the plastic surgeon for some possibilities I am having a reaction to the implants. I didn't have any other signs of a sore throat, redness in my chest area, swelling of the legs, just a bad headache. The only medication I could take was Tylenol. She told me to rest and to call her if the fever gets higher because I might have to go back into the hospital tomorrow to run some testes. I felt better during the day and the fever did go away. I did sleep with an electric blanket on me the previous night so maybe that was a contributing factor. Both of my doctors called to check up on me later in the day to make sure I was feeling okay. The rest of the day and night was okay.
Tuesday, January 13, 2009
2nd day in hospital
Thursday January 8, 2009
I was woken up at 5:30 am for the usual routine check-up so I decided to stay awake. I activated my TV card and watch TV until I could place my breakfast order at 7:00am. I had no food restrictions so I was able to order what I wanted off the menu. I was starving because it has been 33 hours without any solid food. I ordered my food but was told it would take 45 minutes to be brought to my room.
The weather last night was another cold evening so there was a morning delay for the kids to get to school. I spoke with Gene and he mentioned that my mom and him will come to the hospital after they got AJ on the bus at 10:00am. Since Emily has afternoon kindergarten, she went over to the neighbors house for a play date before having to get onto the bus in the afternoon. My breakfast arrived and I was eager to eat my french toast but realized that it was scratching my throat while I ate it. During the surgery as a pre-caution the doctor insert a tube down my throat so I guess it was still sore. (I am glad I was not awake when they insert the tube yuk!) Luckily, I had ordered muffin, cream of wheat and several other foods so I was not starving but was a little disappointed about eating. You forget all these little things after surgery.
My pain level was still around a 5. The nurse would give me a percocet every 3-4 hours and a valium to help the muscle spasm every 6 hours. I also had an IV in my hand for an antibiotic drip and also potassium since the doctor felt it was a little low after my surgery. The day went pretty smoothly. I was able to get out of bed and freshen up and even sat in a regular chair during breakfast time. I had some visitors during the day that made my day go by pretty fast as well as receiving several phone call to see how I was feeling. Gene and my mom left mid day to go home and get the kids off the bus. Gene brought the kids back to see me at the hospital. I was happy to see the kids and they were excited to see where mommy was staying. They had a lot of questions about the room which was all curiosity in their minds. Emily was amazed to see a shower, a refrigerator, a window to look out to see where the parking garage was. AJ and Emily was amazed how my bed was able to move up and down, control the tv and even call the nurse if I needed to. We explained this was the floor and nursery where the both of them were born. They both looked at the menu in which I was able to order my food from and wanted to know what I was going to order for dinner. It was a nice family visit. My doctor gave the okay that I didn't need to be on the potassium anymore through the iv so the kids saw the nurse remove it out of my hand and thought that was something new to see as well. I still kept the needle tape on my hand so when I need to be hooked up to the antibiotic drip twice a day it was in place.
I had two more visitors in the evening and then tried to get some rest. I started to feel a lot of pain this evening. I asked for morphine since I would be in bed to rest for the evening just in case I got dizzy but the nurse said my blood pressure was a little low and the morphine would bring it down lower. So I just kept on my regular pain medications. The doctor also released that I did not have to wear the compression pump for my legs this evenings. I forgot to mentioned in the previous blog that at night I had to wear them to prevent blood clots since I was in bed and not moving. They are real loud and feel like a blood pressure machine tighten and loosing. This night was a little better for sleeping with out the loud noise and didn't get woken up as much by the doctors/nurses. I should be going home tomorrow! Friday
I was woken up at 5:30 am for the usual routine check-up so I decided to stay awake. I activated my TV card and watch TV until I could place my breakfast order at 7:00am. I had no food restrictions so I was able to order what I wanted off the menu. I was starving because it has been 33 hours without any solid food. I ordered my food but was told it would take 45 minutes to be brought to my room.
The weather last night was another cold evening so there was a morning delay for the kids to get to school. I spoke with Gene and he mentioned that my mom and him will come to the hospital after they got AJ on the bus at 10:00am. Since Emily has afternoon kindergarten, she went over to the neighbors house for a play date before having to get onto the bus in the afternoon. My breakfast arrived and I was eager to eat my french toast but realized that it was scratching my throat while I ate it. During the surgery as a pre-caution the doctor insert a tube down my throat so I guess it was still sore. (I am glad I was not awake when they insert the tube yuk!) Luckily, I had ordered muffin, cream of wheat and several other foods so I was not starving but was a little disappointed about eating. You forget all these little things after surgery.
My pain level was still around a 5. The nurse would give me a percocet every 3-4 hours and a valium to help the muscle spasm every 6 hours. I also had an IV in my hand for an antibiotic drip and also potassium since the doctor felt it was a little low after my surgery. The day went pretty smoothly. I was able to get out of bed and freshen up and even sat in a regular chair during breakfast time. I had some visitors during the day that made my day go by pretty fast as well as receiving several phone call to see how I was feeling. Gene and my mom left mid day to go home and get the kids off the bus. Gene brought the kids back to see me at the hospital. I was happy to see the kids and they were excited to see where mommy was staying. They had a lot of questions about the room which was all curiosity in their minds. Emily was amazed to see a shower, a refrigerator, a window to look out to see where the parking garage was. AJ and Emily was amazed how my bed was able to move up and down, control the tv and even call the nurse if I needed to. We explained this was the floor and nursery where the both of them were born. They both looked at the menu in which I was able to order my food from and wanted to know what I was going to order for dinner. It was a nice family visit. My doctor gave the okay that I didn't need to be on the potassium anymore through the iv so the kids saw the nurse remove it out of my hand and thought that was something new to see as well. I still kept the needle tape on my hand so when I need to be hooked up to the antibiotic drip twice a day it was in place.
I had two more visitors in the evening and then tried to get some rest. I started to feel a lot of pain this evening. I asked for morphine since I would be in bed to rest for the evening just in case I got dizzy but the nurse said my blood pressure was a little low and the morphine would bring it down lower. So I just kept on my regular pain medications. The doctor also released that I did not have to wear the compression pump for my legs this evenings. I forgot to mentioned in the previous blog that at night I had to wear them to prevent blood clots since I was in bed and not moving. They are real loud and feel like a blood pressure machine tighten and loosing. This night was a little better for sleeping with out the loud noise and didn't get woken up as much by the doctors/nurses. I should be going home tomorrow! Friday
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